| # | Name | Comments |
|---|
| 1001 | Nora Neighbors | This disease is an epidemic and I want it to be recognized as such. We need Global Awareness for this disease that is a true EPIDEMIC.
Concerts, Fundraisers, Studies, Early Diagnosis, Appropriate Recognition by Doctors of this Disease.
Where is the love? Who put the Lyme in my Coconut? |
| 1002 | C Albert | Blood tests failed to confirm a clinical diagnosis of Lyme, in spite of my 2 year history of progressive neurological problems following an untreated bull's eye rash. Other symtpoms of advanced Lyme have developed during that period, including migraines, dizziness, cognitive impairement and joint pain.
I was told by my ID doctor that my blood test is negative for Lyme antibodies, therefore I do not have Lyme. No other illness was identified that could explain any of my symptoms, and I was offerred sleeping pills to help me cope with my fibrolyalgia-type pain!
Something doesn't add up when patients with symptom history pointing to a classic case of Lyme are being denied antibiotics based on blood tests that are known to yield false-negative results... in favor of sleeping pills. Where is the scientific basis for that? Yet, this is the reality of life for many like me living with Lyme.
This needs to change. Until we have better tests, our doctors must be trained and encouraged to recognize and diagnose Lyme based on clinical symptoms. |
| 1003 | Kim Rojas | |
| 1004 | Ruth A. Loucks, RN | The officials of our government need to know what kind of problems the Lyme patients are up against.
This is one illness that is not being addressed by ALL physicians in a logical manner. I sincerely hope this group continues to expose the hideous problems endured by all of us with Lyme Disease. |
| 1005 | Anonymous | My sister has chronic Lymes. Her symptoms are that of ALS. It is heart breaking to watch her abilities slowly deteriorate. My father and uncle died from ALS in their 60's. Something needs to be done. Instead of spending money on war and distruction. We need to focus on wellness, of people and our beautiful planet. |
| 1006 | Anonymous | lets find a diagnsis and good treatment |
| 1007 | Anonymous | |
| 1008 | William Groll | |
| 1009 | Doug Thiel | Thank You ......We need help!...... |
| 1010 | YT Leist | I can attest to the fact that something needs to be done to fix the pathetic state of US medicne. I saw at least 11 'specialists' and went through over $30,000 in insurance money before finally finding a Dr who had a clue about Lyme Disease. Strangely enough, very little of his care is covered by my health insurance because he is an Integrative Medicine Specialist and used both traditional and alternative supplements to treat the disease.
It is truly a shame that we have to do things like sign petitions like this just to get proper medical care. |
| 1011 | Anonymous | My Colleagues view all of the above as 'not-diseases' with their bizarre symptomology and lack of objective diagnostic tools sufferers have been labelled as depressives or the anxious. Studies have disputed this diagnosis. I also have an interest in PTSD, strangely PTSD shares the same symptoms. |
| 1012 | Marlaine Chrystal | I can give you a story of a Lyme victim since 1971..
This one will curl your hair for sure.. |
| 1013 | Robin Curran | |
| 1014 | gail macinnis | shame shame on the insurance companies and the medical profession. It's time doctors got back to their oath and start learning beyond what they are told by the drug and insurance companies. What prevents them from doing their own research? |
| 1015 | Vicki Giangrasso | Mis-diagnosed over 15 years, a pos em rash and 7 days of doxy in 1994,- also unknowing victom of lymerix, just made aware feb/08 by ME, after doing the jobs of my doctors and actually reading ALL of my medical records. This disease ruined my entire life- a great career, loss of my home , uninsured, litterally kicked to the curb like a piece of trash- this is shameful- dreadful, and enough is enough. It is litterally impossible to get treatment unless you have wealthy friends and family- completly inhumane- This is torture like in the ancient times, and here we are letting history , once again repeat itself. Chock another one up for the history books, at mine and hundreds of thousands of others expense- turning a blind eye never resolves anything. 20 years of protests and ignoring all these people that are being labeled as crazy because we have nothing better to do but make up illness's- I've given evey last penny to this disease and have no help from the government because my ssdi pays more than 758 a month in benifits,- adding insult to injury, I am left to rot and let the spirocettes just drill away at my central nervous system and brain. TORTURE- PAINFUL TORTURE. |
| 1016 | Carolyn Heimberger | |
| 1017 | amber Jones | |
| 1018 | Joe LeBlanc | Sponsor the Congressional Briefing Luncheon on Sept 24 to educate our elected officials on how Lyme disease is affecting thousands of people.
Check for more info at www.natcaplyme.org |
| 1019 | Fran | Please help. I've had it twice. |
| 1020 | Emily Fattrusso | |
| 1021 | Laura | I was finally diagnosed with Lyme after 42 years of chronic illnesses. I was bit by a tick when I was 3 years old. My doctor thought I had Juvenile Rheumatoid arthritis. Doctors thought I had Lupus, MS, Fibromialgia, you name it I might have it. Now I am being treated by a competent Lyme doctor and the treatment is frightening. Some days you wish Lyme Disease was fatal because you life is changed forever. I take alot of pills four times a day, extreme fatigue, extreme pain if I miss taking any pain pills, my language is impaired... it goes on and on. I'm angry that I wasn't diagnosed earlier! My previous primary doctor was a QUACK. I've had over 200 pain shots in my back over one year. They are excruciating. America needs to recognize that Lyme is an epidemic. I'm sick and tired of running into people in the medical field that fight you every inch of the way when it comes to Lyme. They act as though you've killed there mother. Very odd... |
| 1022 | Anonymous | I have been struggling with Lyme disease for almost 20 years. The past 3 or 4 have been the worst! |
| 1023 | Anonymous | |
| 1024 | Stephanie Klemarczyk | |
| 1025 | Philip Lang | I've had Lyme for 3 decades, it has stolen my life. Doctors have failed me utterly, now they want to sweep chronic Lyme under the rug. It is beyond outrageous and insulting. |
| 1026 | Katalin Miklos | Please recognize lyme disease and Chronic Fatigue Syndrome as the terrible diseases they are - and spend the money to research cures and treatments for the thousands of people who are suffering - the governent is already paying the money in disability and medicare, so why not spend it instead on learning to find a cure? Let's take the proactive route rather than hiding our head in the sand and pretending these diseases aren't as bad as they truly are. People are suffering, it is time to stop blatantly ignoring them. |
| 1027 | John Allen Howe | Ive lost my life,hope you twats lose yours. |
| 1028 | Robert Manten | Became sick in 2004 after tick bite. Took 10 months to be diagnosed with Lyme disease. The doctor who diagnosed me in 2005 had 125 active Lyme patients, all but one tested negative with the Canadian Elisa test. All tested positive with the Igenex Western Blot. |
| 1029 | Nancy Elsberry | |
| 1030 | Dawn Wyzen | |
| 1031 | Susan Roux | I had LD for 11 years until I was diagnosed. My MD at the time diagnosed me w/ CFS in 1994. In 2000 at age 35, I had a stroke. My MDs did a Lyme test during my hospitalization. He told me it was negative. In 2005, I found my test was actually positive. I began treatment for LD in 2006. Although my CSF Lyme test was negative in 2007, I continue to be symptomatic.. This is a debilitating illness if not treated early. We need better guidelines for diagnosis and treatment. The long term effects of this disease are incredibly dibilitating. |
| 1032 | Anonymous | |
| 1033 | Ali Kirby | I am so fed-up with the "passing the buck" syndrome of our local, provincial, and federal governments. It has become embarrassing to be a Canadian and to be denied treatment to a very real and devastating disease(s) called Lyme Disease and its co-infections. This government in its denial has stolen my life and denied me a quality of life! I now must seek treatment out of my own country and out of my own pocket! |
| 1034 | Anonymous | The fact that this disease is unnoticed by our governement is un-just and in-humane. |
| 1035 | Debbie Amoroso | |
| 1036 | Debbie Amoroso | |
| 1037 | Ryan Glidden | |
| 1038 | Bill MacDonald | I have been dealing with the symptoms for over two years. Tested negative in June 2006. The doctor did not even question the results. constant visits back to the same clinic, seeing who ever was on call, they treated me for back pain, head aches due to arterial imflamation, sleep problems, chronic fatigue but never again checked for lymes. While in Connecticut for Christmas holiday 2006, I had finally got to the point that my entire left legg had swollen so bad I had to go a local hospital. They tested me for everything, I came up positive for Lyme on the ELISA. Then the Western Blot showed 11 positives out of 13. Five weeks of Doxy, no improvement, 30 days IV ceftriaxone. A minor improvement but it did not last. Three months later my Western Blot shows 12 Positives. I feel like I am dying. Joint aches, headaches, muscle spasms in back, neck and shoulders. No short term memory, constant confusion and fatigue. The depression is overwhelming. I am not sure how I will be able to continue to stay employed and support my family. The lack of support and understanding about the seriousness of this disease is astounding. Insurance companies don't want to pay to help, MD don't understand it, family members can't understand the damage the symptoms create. God help anyone with this disease.
When i was a little boy, my dad was diagnosed with parkinsons. Our family doctor told him and my mother that it would never kill him directly, but eventually, it would make him wish it did. 50 years later, I now finally understand that. Lyme has ended my life as I knew it. It has caused a level of depression and hopelessness that i did not think I would ever experience. I reached a point where I don't really care about my own health anymore but I am panicking about what I am leaving my wife and kids with as this thing slowly destroys our quality of life, my career, our finances and happiness. |
| 1039 | Christine MacDonald | |
| 1040 | V. Ross Johnson | It's about time. I'm with you all the way. |