| # | Name | Comments |
|---|
| 851 | brittany Moore | |
| 852 | Brandon Russell | |
| 853 | Pharron Banghart | |
| 854 | Anonymous | The amount of suffering from this disease is undeniable. Insurance companies are spending countless dollars on misdiagnosing these patients. Please support the need for improved testing and treatment protocals. |
| 855 | K. Little | The science is clear: the cyst form of Lyme is resistant to traditional antibiotics and testing, and the blood-brain barrier is difficult to penetrate. These factors make it exceedingly clear why Lyme persists. Treating the bacteria, not the symptoms, is the only long-term solution. The guidelines must reflect the best science. |
| 856 | Anonymous | I have lost my career, remain on dialysis, and now have a cystic form of the disease due to the ignorance and unwillingness to understand the disease from physicians in my region.We all need legislation approved to face and treat this disease. |
| 857 | Marisa Busse | |
| 858 | Cheryl Curtiss | |
| 859 | Lynn Michaels | The repercussions of this now global pandemic cannot be calculated...
The seriousness of Lyme disease and how completely widespread, under diagnosed, misunderstood and underreported is, in fact, putting our collective health in jeopardy....
You won't find this information hitting mainstream news.... no one in positions of authority - our government or insurance companies - wants this information to be known... Lyme is a bioweapon... and they've done one fine job in creating it, putting it into the population and having NO ONE know what has hit them... |
| 860 | Anonymous | This is ridiculous |
| 861 | stacy hultman | Please research the importance and value of life. More importantly, look at the reason and promises insurance companies are making. I think Lyme disease should be considered as the global health problem as it is, making lots and lots of people losing their health, hope, lives and families. There really is need for lots of serious research of the disease, testing and treatments, which also should be brought to light and attention of people everywhere. It is difficult and tragic enough to be ill, without being misdiagnosed or ill treated. I am signing this petition in hope of making a difference! |
| 862 | Denise Otten | |
| 863 | V. Bryan | |
| 864 | Anonymous | it's time |
| 865 | Anonymous | |
| 866 | Lisa Burg | Even though I have tested positive for Lyme, and it's evident that I contracted it almost 2 years ago (when I first noticed symptoms) the local infectious diseases doc only advocated a 2-week course of IV antibiotics. He said if he pursued my case as Lyme he "would be laughed out of his profession." My symptoms continue. |
| 867 | Diane McMahon | Please don't leave us alone to suffer and fight for the smallest piece of normalcy and pain free living.
Fight for us, PLEASE! |
| 868 | lyle murphy | I support the investigation of Lyme Dx |
| 869 | cg | |
| 870 | Brin King | Inreviewing this petition,I could not agree more,that this petition should be signed,recognised and more done for the many of us,with this dehibilatating disease,with no answers,nor cure. This is a disease that needs to be made accountable,instead of ignored,mistreated,misdiagnosed and lack of consistent research done on,.
It is one thing to talk about what could be done,what might be done and perhaps a research
done half way through but stopped due to lack of funding and recognition that this disease is real and far beyond epidemic in this country,The United States of America, as well as in several countries abroad as well. Wake up people,C>D>C., W>H.O
A |
| 871 | Crystal Wible | |
| 872 | Eduardo Inal Alvarez | |
| 873 | Neil Martin | |
| 874 | juli mancini | |
| 875 | Christina | I suffer on a daily basis from Fibromyalgia and Peripheral Neuropathy. Both leave me fatigued beyond belief and in constant and agonizing pain. I used to be a very active person and have an occupation of a School Bus driver. Now I am lucky to be able to do the daily chores I need to, like take a shower, get dressed and cook meals. This condition has caused my legs, feet and upper body to go numb at time and I fall down a lot. Not only is it embarrassing it is painful and in Feb. I broke my Right Femur due to a fall. I have been going to the Dr for over 2 years, and been jerked around because of my Group Health Insurance. Medications that might help were off limits to me. I have been given medications that have caused my hands to bleed internally, made my stomach burn inside like it is on fire. Finally I was allowed after 3 or 4 other failures to use another Medication that has been helpful. I now suffer from depression on top of it because I feel like I can’t be of much use because of the constant pain and also because I have people like Social Security telling me that Yes I have these problems but, I really don’t.
We are not gunnie pigs, we are human beings. We have the rights as human beings to be able to decide when we are in pain, when we have problems, and not be treated like lab rats. Some days I can hardly walk because of the numbness and pain, I think before other people try and tell someone how a condition affects them or the pain that they have is not severe they should walk a day in my life, then tell me how I FEEL! |
| 876 | Nicholas Kelly | I am currently in a wheelchair as a result of my Chronic Lyme. I am also expecting a baby in December, I worry daily how a condition, (which can be cured, or at least improve my life) will affect his upbringing. Something needs to be done. |
| 877 | C Heidt | |
| 878 | lori lawhead | |
| 879 | lori | I just got done watching Under Our Skin. What a wonderful documentary. I must say that i am disgusted in these panels, like Dr. G Wormser and the others as to how they wake up in the moring and look at themselves. This is what i would like to see happen: Chronic Lyme does exist; new quidlines that will allow your doctor to treat in way he feels best, oral or iv, whatever is the choice and the insurance company wil have to deal with it.; the wonderful doctors who were fined and medical licenses suspended should be reimbursed for all losses,; last but not least, all sufferers will have a chance at getting better, lower medical bills and hopefully more lyme literate doctors that will treat a patient in the area of which they live so they dont have to loose all of their income to this horrible disease,,,and while this is going on, a hefty law suit to each and every sufferer for medical bills that werer denied, travel expenses to doctors, lost wages and emotional and physical trauma that will always be with them because of ignorance. That would be my only wish!!!!! |
| 880 | georgia firman | |
| 881 | Thomas J. Pavlik | Our own president has now been treated for Lyme disease. Luckily for him, he was able to undergo treatment early, before chronic symptoms such as what I have set in.
Our country will have an unimaginable burden due to Lyme and coinfections that stand the potential to bring our country to its knees. We must act like a nation.
We are living like the citezenry who endured the Black Plague when an untold number died. Despite the overwhelming evidence on what the right course may have been, those people took almost no sensible measures to save themselves.
Lyme will devestate all families before long. It will come from unexpected vectors and will linger in family members who will suddenly become chronic.
It will affect the rich as much as the poor, and they will be nearly as helpless.
Act now to address this critical issue before your own loved ones are severely affected. |
| 882 | Michael Goodnight | |
| 883 | Jamie J. | Lyme is punishing and a cover-up! The insurance/medical community together do not want people diagnosed w/ Lyme. Funny how President Bush got a "clinical diagnosis" however, average citizens are referred to as nuts when they have symptoms of this horrible illness... WAKE UP US Gov't and help people! |
| 884 | Eileen Knox | |
| 885 | Anonymous | So how well does the government we pay taxes to really work for us. The cdc fda idsa ama... seems they work against us, wonder why?
My whole family is sick with this. |
| 886 | Jennifer Earl | |
| 887 | gretchen klein | |
| 888 | Anonymous | |
| 889 | Robin Zweibel | I will do anything to get the word out. |
| 890 | Kimberly Lewis | I am a neuroborreloisis sufferer after being under treated fro lyme disease in 2001. I am in a wheel chair now and do not know if I will ever recover enough to live a normal life. |
| 891 | Joy Wilson | Have watched my 18 year old daughter loose her quality of life. She is inflicted with an infection miss diagnosed and struggling to find the correct treatment, doctors and money to continue the fight because insurance doesn't cover Lyme Disease. This is how we have spent the majority of the past 4 years since her tick bite. There are no words for how debilitating a disease this is and what makes it completely worse is not having the acceptance that chronic Lyme disease even exists. |
| 892 | m white | i have no lyme diagnosis but suppot all the findings represented here, and urge those who can, to at least re -examine the official responce and recomendations regarding this dibilitating desease. The degree of infection is set to soar-as there are studies which show north american mosqitoes also carry borrelia spirochettes. Your children are at risk too! |
| 893 | Duane Carlson | I was diagnosed with Lyme Disease in the late 80's, but probably had it since the early 80's. I'm sure I am still struggling with the symptoms of the Lyme Disease to this day. My daughter is also struggling with this disease, as it took her 12 years to get diagnosed although she had every symptom that I had, and the Dr.'s would not believe her because she had over 15 negative tests documented, but now she is finally CDC positive after 12 years.. She was a Professional Golfer for the state of Minnesota, now she is disabled. Shame on you, Government, for wasting my daughter's talent away. Look at what you have done!!!! Do you think that by lying to the public that this has made us believe in you any more? This is a National Travesty that you people over there in Washington created. With the Big Bucks filling your pockets, does this really make you proud? I believe that the final judgement will come down on all of you DANG HARD!!! Wake up, and knock this off now. Start treating us suffering with Chronic Lyme Disease with dignity and the respect we all deserve. We don't need change in Washington, we need a GIGANTIC SHAKE UP IN WASHINGTON. I BELIEVE THERE SHOULD BE A LIMIT ON YOUR TERMS THAT YOU SERVE FOR THIS COUNTRY, SO MAYBE SOLUTIONS FOR OUR COUNTRY CAN BE RESOLVED SOONER, OR ELSE GET OUT OF SERVICE FOR US IF YOU CAN'T GET THINGS DONE IN A TIMELY MATTER, NOT YEARS AND YEARS DOWN THE ROAD!!!!!!! WHAT IS WRONG IN WASHINGTON??? TIME TO TREAT PEOPLE RIGHT, AND QUIT THE LYING!!! I AM ONE VOICE SPEAKING FOR MANY THAT ARE THOUROUGHLY DISGUSTED WITH YOUR ACTIONS AND LACK OF ACTIONS. I AM VERY CONCERNED FOR ALL THE INDIVIDUALS AND FAMILIES SUFFERING WITH CHRONIC LYME DISEASE. ENOUGH IS ENOUGH!!!! FIX THE PROBLEM OR GET OUT OF PUBLIC SERVICE!! |
| 894 | Peter F Kemp | Borrelia infection for 17 years - diagnosis: M.E. (Myalgic Encephalomyalitis). 2 years antibiotic treatment. Still many borrelia present and observeable with microscopy. See:
http://www.geocities.com/counsellingme/microscopy/videos.html |
| 895 | cyril mundy | Two neg. tests over 8yrs.have left me crippled and unable to work.Live blood tested with microscope two yrs. ago found Bb--Lyme disease,on ABX and getting better
Are we in the 18 or 20 century???? |
| 896 | john | i was undertreated by an infectious disease doctor in kingston ny. i had ALL the symptoms plus a history of a rash 1 weeks after a series of 13 tick bites in about 3 months.
he said i don't have lyme.
8 months later i am being treated by a real doctor for lyme, rocky mtn spotted fever, and mycoplasma. |
| 897 | Mark Sikos, DC | Complicated disease processes in the US usually end in morbidity or mortality. We hand out statins, diabetic meds, NSAIDS and antidepressants like candy rather than prevent. Physicians that try to treat Bb are run out of town like snake oil salesman. Until the research says otherwise. Let the patient and doctor decided. |
| 898 | corrinne downs | |
| 899 | Nanette Terranova | Imagine a world where all we needed is antibiotics to make us well... THIS IS THE CASE! Lyme & Tick born co-infections EXIST And is destroying lives! It took me 25 yrs to get the proper treatment and IV Antis is equivalent as spinach is to Popeye.. I feel hopeful w/IV treatment and have reversed many other problems which needed meds, such as: Getting off synthroid b/c my thyroid stabilized on IV treatment for LYME God help us w/this travesty |
| 900 | Annette Miller | |