| # | Name | Comments |
|---|
| 1 | Anonymous | |
| 2 | Scott Forsgren | Let's keep patients in mind and make decisions based on helping people not lining the pockets of the drug companies. |
| 3 | Anonymous | It is a travesty to be experimented on unwilling and without consent. It is a crine to further the experiment or cover it up with bogus studies, tests, and treatment. |
| 4 | Jay Lux | |
| 5 | James Morman | |
| 6 | Linda/Angel | Enough is Enough....we MUST be a VOICE in CHOICE for our healthcare and for our doctors. It is time that WE the people start standing up for our rights and our CHOICE of healthcare. |
| 7 | Miguel Perez-Lizano | |
| 8 | ronda bartholomew | |
| 9 | Tracy Will | |
| 10 | Anonymous | I was born and raised in Oregon and spent a lot of time in the woods and at the beach. In 1992 I was diagnosed with MS and in 2004 with Lyme Disease. |
| 11 | Linda Rinaldi | Please help us. This is the most pressing issue facing our United States, the cover-up of biological warfare accidents that have devistated my family and many others. Lyme is horrible. |
| 12 | Anonymous | Over 30 years in LD research and Patients still have to beg for: One Reliable Diagnostic Test; More Clinical Trials Focused on Treatment or Cure; Research for Cure. In addition, patients expend all their energy fighting the very doctors who should be doing all this research for them. These doctors, highly paid by the insurance industry, continue to belittle and ridicule patients and the illness. They do nothing to further our knowledge about this complex and disabling (and in some cases, very deadly) disease. And, now that Lyme Disease is Epidemic in the US, the Ivory Tower geniuses in control of the medical literature and medical insurance industry treatment guidelines, flatly state that "Chronic Lyme does not exist." This is not Science. It is Fraud. These are the "experts" who should be investigated and fined and removed from practicing "medicine". How many more decades does the Lyme Community have to wait for humane treatment, honest research, accurates tests and treatment protocols. A cure may not be possible, but certainly there must be some verifiable treatment protocols that can be established and agreed upon (and medically covered). Only the AIDS community has suffered the amount of ridicule and abuse that the Lyme Disease community has, but they had to die in great numbers for anyone to take them seriously. We are not dying in great enough numbers...yet. But, hey, is anyone really counting the suicides? |
| 13 | Pamela Marks RN | |
| 14 | Michelle Cole | |
| 15 | Louise McAndrews | |
| 16 | William E Peace | We need all the help we can get . This disease is REAL!! PEACE |
| 17 | Kathleen M. Dickson | This crime was already formally filed with the USDOJ, but unfortunately we cannot expect law enforcement to protect us from criminals.
http://www.actionlyme.org/USDOJ_COMPLAINT_RICO.htm
Pawcatuck, CT, USA |
| 18 | Joshua Marks | |
| 19 | Anonymous | |
| 20 | Leah Marks | My mom and brother nearly died of misdiagnosed lyme. They have the DNA in their blood after 5 straight years of antibiotics. Please stop this madness and help so many sick Americans. Love Leah FL age 9 |
| 21 | Lisa Doyle-Torrey | |
| 22 | Rebecca McLaughlin | Isnt it time the government wakes up and starts helping? Enough is enough! We are citizens too! |
| 23 | Dawn Irons | |
| 24 | melissa kerins | |
| 25 | Lori Hoerl | I nearly lost my life to highly advanced neurological manifestations of Lyme disease. I lost my life savings, my ability to walk for nearly two years, my life savings and the prime of my life as well. I almost lost my eyesight.
It was not because there wasn't a treatment(s) but, rather, due to ignorance in our medical community followed by clear political evasion on the part of the CDC and the insurance industry who didn't want my specialist to do his job because saving my legs and my life cost too much money. Despite my having paid thousands of dollars in taxes, in insurance premiums and being a productive, viable member of society before I was infected.
It took 2 1/2 years and 7 doctors before I diagnosed myself through research and found a world leading expert to confirm what I already knew.
Shame on the CDC, the insurance industry and the IDSA for believing they have right to determine who gets to walk, see, live or die.
Your collective misinformation to the public surrounding the true prevalence, incidence and potential of this disease is precisely what the rest of the world despises most about America...(not Americans), but our government...its arrogance and clear focus on empowering the already wealthier and more influential while exploiting and further oppressing the very foundation of this country - honest, hardworking, taxpaying people. |
| 26 | Anonymous | Last November the CDC initiated an awareness campaign to educate doctors and the public about CFS (Chronic Fatigue Syndrome). In their press release they stated: "It's now time to put to rest the notion that CFS is in the mind. It is a real physical illness that can be as debilitating as late stage renal failure, AIDS, MS and pulmonary lung disease". Additionally, their Wichita, Kansas surveillance survey projected a national infection rate of 4 million persons.
It has taken well over 20 years for the CDC to even acknowledge CFS as a real physical illness. Additionally, their new surveillance numbers incorporate a vast number of persons who fit the loosely based diagnostic criteria, which surely includes a majority of patients who suffer from psychological and/or somatic illnesses. The CDC has know from the very beginning that some person's are afflicted with much worse symptoms than others, which includes persons who experience neurological symptoms. Yet, the CDC still fails to subgroup patients into various illness categories. Their failure leaves those severely affected with continued difficulties in obtaining deserved disability status. This failure to subgroup also continues to subject patients to ridicule from both the public as well as the traditional medical community.
It is my hope that the various illness groups will join together with their plight for recognition and biological research funding. These various illness organizations include, (but aren't limited to): CFS, Fibromyalgia, Chronic Lyme Disease, Multiple Chemical Sensitivity, MS, Lupus and Mycoplasma Pneumonia Infection. Would it not make sense that these various organizations join together and unite with their efforts? Perhaps then we could collectively offer a significantly stronger voice towards obtaining our respective goals. We're all in this together and the sooner we collective make our voices heard the sooner we will begin to move forward with genuine progress. |
| 27 | Brad Clark | Even though I am signing this petition. I don't believe the corrupt medical profession and government will do anything to stop this exponentially increasing and deadily disease. For decades Lyme organizations have been pleading for the government to do something about this. It is blatently obvious to anyone that instead of coming to the aid of all this needless suffering that money, power, pride, stubborness and control are dictating peoples lives and destiny.
This is the last petition I sign, from now on I will be starting my own grass roots campaign which will be acting instead of dragging heals, curing instead of covering up symptoms, educating instead of suppressing. This is not a democratic society when it's own medical profession and government don't listen to it's own people, this is more like a dictatorship.
The time to act was last decade everyone! The people have a right to be healthy and happy!
Brad Clark |
| 28 | Anonymous | |
| 29 | Constance L Gilbert | I was treated successfully for Lyme disease by a specialist in Wisconsin. It took 12 weeks of IV ceftrioxne and a total of two years oral meds. I was very ill and required a lot of attention by experts such as Dr. Jones. She is a lifesaver. |
| 30 | Sam Horner | |
| 31 | Susan Williams | |
| 32 | Matthew Bromberg | I am another chronic disease victim, probably due to Lyme who tests negative on the standard tests. This is destroying my life and is burying my family financially. The health care industry is doing more harm here than good. Please help us. |
| 33 | Debra L Reynolds | I speak not only for myself, but for my beautiful sister, Susan Reynolds-Marshall, who committed suicide at age 46 because of suffering for so many years with this chronic illness. |
| 34 | mike kleinman | I'd like to see nih make a special effort at funding lyme specific research. I'm aware of many grant proposals in the pipeline which when funded could be of dramatic importance and understanding into this and other chronic diseases. |
| 35 | Edy Rayfield | |
| 36 | Paul Munro | |
| 37 | Les Roberts | |
| 38 | Steve Pennington | |
| 39 | Anonymous | |
| 40 | Laurie Blair | The first doctor to diagnose me probably did not do me deliberate harm - this was in 1984. He did not treat me long enough (7 days) however and I now have Chronic Neuromuscular Lyme and have been ill most of my adult life. Since the doctors know better now -- in 2007 -- any doctor who does NOT treat adequately or who denies treatment to a Lyme patient IS CRIMINAL. |
| 41 | Anonymous | |
| 42 | Gary Polinsky | We MUST fight if we want choice. Our freedom to do much of anything is on the kitchen table. Fight for your rights before it all gets thrown under the table. We must act all togather as 1 or we will face the consiquences. |
| 43 | Jill Fisher Cope | |
| 44 | Richard Reis | |
| 45 | Tina J. Garcia | Specifically, the CDC, IDSA and AAN are sentencing chronic Lyme patients to LIFE IN PRISON FOR THE CHRONICALLY ILL, as a direct consequence of their ongoing denial of chronic Lyme disease. The IDSA and AAN have published Treatment Guidelines that contradict the Guideline authors' own research. The CDC is in breach of its duty to serve the public, and thereby misusing appropriated funds, by failing to provide informed consent to physicians and patients by posting only the IDSA Guidelines that are under civil investigation for possible antitrust violations on their website. These combined actions by the CDC, IDSA and AAN are causing shameful physical, emotional and financial harm to chronic Lyme disease patients nationwide. |
| 46 | Diana K. Shepard | I am very fortunate to have found two Lyme Literate Medical Doctors (LLMD). My titer and Western Block both came back negative. No local doctor would listen to me even though both my dogs tested positive for lyme (one had symptoms the other none). My symptoms began approx. the same time the dog's symptoms began. It took the vet clinic 6 months to figure what was wrong with our dog. (It took me a whole lot longer.) After getting the right antibiotic in my system for approx. seven weeks I noticed the joint pain was gone. It has been a year and a half and the pain is still gone. What a difference has this made for me...it gave me my life back. How lucky I was to have my dogs diagnosed with lyme and that I found two LLMD's, who would listen (clinically diagnose me) and go outside the box to treat me. How many people are out there suffering needlessly? I am still not sure that I am out of the woods yet as I never know if this disease will again rear its ugly head. |
| 47 | Elizabeth Neal | |
| 48 | Anonymous | |
| 49 | Linda Sauer | |
| 50 | Sigrid Auslander | |