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Investigation into Lupron Side Effects

 

 

# First NameLast NameStateCountryComments
401 AnonymousAnonymousAZUS
402 LeslieSlavensNYUSno drug should hit the public until it is safe!
403 TheresaLewisFLUS
404 AnonymousAnonymousTNUSI took the Lupron shot yesterday...I am so afraid. I did not have any information about the warning about the side effects. I am really confused and there is no going back. What do I do now? Go nuts...and let everyone around me suffer?
405 AnonymousAnonymousOHUSAfter taking Lupron I suffered from extremly high BP readings and potassium loss with severe headaches. My body seemed to go haywire. I have continued to develope more health problems which repeat themselves. I have hospitalize for complications that that have puzzled doctors.
406 DonnaBaylessTNUSAfter 4 years I am still experiencing joints that ache constantly and some memory loss issues.
407 AnonymousAnonymousFLUSI had 7 shots of this drug. Make me wonder about all the things that are going wrong now. Hot face High triglycerides Joint pain
408 AnonymousAnonymousMEUSI had my first shot about a month ago and have to have my second shot in December. I am only 33 years old and I have already started having hot flashes, even though I go to bed early I wake up exhausted and feel like I haven't slept at all. I get irritated really easily and have started having chest pain and distcomfort on my left side. I am not sure if all of this is caused by the shot but I am a little worried. The doctors don't know if I have endo but said it sounded like I did and suggested the shot because I have had two scope surgeries in the past 11 years and they have found nothing. I have been suffering with chronic pain in my right side since I was 10 and all the doctors I have seen haven't been able to tell my why or what is causing it. I was just willing to try anything to get rid of the pain at this point but was only informed of the menopusal side affects and not my other symptoms that just seemed to start after my shot. I had severe pain at my injection site for 2 days and severe pain in my right side and nausea for the first 2 weeks after having the shot.
409 TammySCASince my one and only injection, I have been severely ill and my pain for my endo and fibroids is not better! Im so sorry that I finally gave into my doc and took the drug! I suffer from severe low back and joint pain, nausea,fatigue,night sweats,headache,weakness,memory loss,irratiblity, and the list goes on! I feel so much pain now, I hardly can work and cant get out of my bed! Im very angry at the govt, for allowing this drug, which I believe does not help, it only exacerbates and makes us sicker!! I wish I would have been told all the neg, side effects and definately would NOT have taken this! I really now am affraid for my future as Im only 36 and suffered over 20 years with my pain, which is now WORSE! Please help and do something! Dont let more people have to endure this awful and devestating drug!
410 BrandiEasterNCUSI took Lupron injections for 2 years when I was 8 for precocious puberty and I believe that I may be suffering long term effects now
411 AnonymousAnonymousTNUSI was not told about the side effects that REALLY happen. It did not help me at all, produced no shrinkage. I was being treated for a fibroid about 8cm across. The side effects have been terrible over the last 5 months. This hurt a lot, and helped none. The information I recieved was incorrect and did not fully explain what other side effects might occur.
412 DebbieChandlerCAUSI started taking Lupron In July of 2007. In September of 2007 I started having SEVERE PAINS in my knees, ankles, shoulders, back, elbows and wrist. I called my OB/GYN Physician and explained to her I think it is from the LUPRON. She stated it could not be. If that were the case it would have happened immediately. Not two months later. If I think it is the LUPRON then take the birthcontrol she prescribed to me and if the pain gets worse go to the ER. On October 25, 2006 the pain and inflammation was so great, i did go to the ER. The attending physician was very emathetic with me UNTIL, she called my OB/GYN. After that conversation, she came back to my room and said verbatim exactly what the OB/GYN had stated to me earlier, and, her attitude and behavior toward me turned cold and evasive just as my OB/GYYN started to behave toward me. She dismissed it off as, now get this, "YOUR BODY IS ANGRY WITH YOU FOR SOME REASON AND IT IS JUST ATTACKING ITSELF", you should follow up with your primary care Physician. As of today, I have not gotten any answers but, i promise you i will.
413 AnonymousAnonymousOHTest this drug!
414 RebeccaBennettIDUSI am a 26 y/o female diagnosed with endo at 22 when a laparotomy revealed the need to remove my right ovary due to a ruptured endo cyst. I have been on progestin birth control pills since. Recently it has been discovered that my remaining ovary may be in the same danger. My doctor suggested Lupron, stating that hot flashes where the worst of the symptoms. Thank God I came across this site and many others containing real accounts of the actual effects. I will not be taking Lupron! I will be opting to stay with the progestin pill and a better diet. If I am infertile, then so be it, there are many children out there who need parents. My biggest concern is losing my only ovary and going into menopause. Doesn't seem rational to take a drug that causes the very thing that I'm trying to avoid most. I'm also signing this petition in regards to the principle that not only does Lupron need adequate investigation but so does endometriosis! For heaven sakes, every women with this disease should be included in some kind of collective study! We're never going to find a applicable treatment if we don't start understanding what women are truly experiencing.
415 AnonymousAnonymousNJUSI AM A VICTIM OF LUPRON. I AM TRYING TO GET LUPRON VICTIMS TOGETHER TO GET A LAWSUIT GOING. THIS DRUG HAS DESTROYED MY LIFE SINCE TAKING IT IN 2002 AND THE SAGA IS CONTINUING. PLEASE E-MAIL ME IF YOU ARE INTERESTED IN TRYING TO GET A CLASS ACTION GOING ON THIS TOGETHER. A PETITION ALONE IS NOT GOING TO DO IT. WE NEED TO GO INTO AN ATTORNEY'S OFFICE TOGETHER WITH OUR EVIDENCE OF WHAT DAMAGE THIS DRUG HAS DONE TO US. MY E-MAIL ADDRESS IS: LOUISEKATLVR@OPTONLINE.NET
416 AnonymousAnonymous
417 AnonymousAnonymousTNUSMy girlfriend has been taking these shots and I have witnessed the side effects first hand thru her. I feel this drug should be removed from the market. It really causes more pain than help.
418 AnonymousAnonymousTNUSMy girlfriend has been taking these shots and I have witnessed the side effects first hand thru her. I feel this drug should be removed from the market. It really causes more pain than help.
419 AnonymousAnonymousTNUSMy girlfriend has been taking these shots and I have witnessed the side effects first hand thru her. I feel this drug should be removed from the market. It really causes more pain than help.
420 WandaHSCplease research lupron This shot has Changed my life. I have been sick for weeks. I can't sleep, I'm always nauseas and I have developed joint pain all over.
421 MaryFortNJUS
422 DeborahSrbichMNUSIt's been just a little over 2 years since my 2nd of two monthly shots of Lupron. My life was turned upside-down by this drug. I've suffered severe muscle weakness, cognitive issues, numbness, joint pain, severe bone pain.... etc. I'm left with a body that feels 78 instead of 48. I have NO DOUBT that Lupron is the cause.
423 ElizabethHodgesTNUSWent through 6 months of neurological diroders immediately after Lupron wore off- neg for MS & stroke. Still suffer 3 years later from slight tremors and insomnia. Been labelled as "allergic" to Lupron. Endo pain worse- have been denied hysterectomy cuz docs don't know if I went "crazy" due to Lupron or hormones. Have been ref to "pain specialist".
424 AmberSpyresOKUS
425 BeckyMetzlerOHUSI was on lupron in 1999 for 6 months and I have had on going problems. I just found out Tuesday that I have a bone spur in my shoulder. One of the risks was you loose bone mass. This is the second one I have found. Please be careful on this drug. Yes it may help. But think of the after affects!
426 LynnUDEUSI've had 3 sets of Lupron. After the 3rd set, I started getting kidney stones, and now, 8 years later, they haven't stopped. On a monthly basis, if I'm lucky, but smaller ones on a weekly basis. I also have joint pain, depression, my BP disorder is out of control. I also have osteopenia, low grade fevers regularly, and many, many other problems I didn't have before. I now no longer trust Drs, have PTSD, white coat syndrome, and a long list of both physical and mental problems, and am unable to work, or have a productive life. If only I could turn back time. It sickens me that they are still conducting new tests with this poison, without "knowing' (we all know they know), the long term affects.
427 AnonymousAnonymousWYUSLupron has destroyed my life and my sanity as I cannot get help with getting this drug out of my system. I have horrible pain from head to toe, brain fog, mood swings, and sudden "attacks" which take too long to describe. I have thousands of dollars of medical bills and no lawyer in site. I was told this was a natural hormone and could not hurt me. I am enraged and feel I have no control over my body anymore.
428 SueStruthersMNUS
429 BreanneKwateraMNUS
430 SheilaBrownMNUSMy mother in-law was giving this shot. And now she has bones of a 70 year old woman. She is sometimes unable to get herself out of bed she is in so much pain. I think doctors don't do the job they are suppose to do. They sometimes do more harm to people then help them. What did they go to school for to help the drug companies or to help us the people who are sick.
431 AmberStumpfMNUS
432 AnonymousAnonymousMIUS
433 AnonymousAnonymousINUS
434 MaggieDustinNYUSI took 3 shots of Lupron, even though it was not helping my pain at the time. I now, still have pain, only now it is magnified. Along with this pain, I have most (29 out of 33)of the known side effects, with no help in sight...I am only told that there isn nothing wrong, as blood tests have not been able to show anything wrong. These side effects include: rashes,vasodilation, burning sensations, tingling, itching, headaches and migraines, dizziness, hives, hair loss, severe non-inflammatory joint pain,difficulty breathing, chest pain, nausea, depression, emotional instability, loss of libido, dimness of vision, weakness, amnesia, hypertension, rapid heart rate, muscular pain, bone pain, abdominal pain, insomnia, swelling of hands,general edema, anxiety, and vertigo.
435 NicoleMyers HendersonNCUSThis drug should be taken off the market for good! I has destroyed many many lives.
436 georgiamathewsMIUS
437 AnonymousAnonymous
438 LynnHoffmannWIUSI am really scared. I took my second shot (11.25--3 month dosage) of depot lupron in October. I have continued to get my period, as if I have never taken it. I also now have this thing where when I try to go to bed, I have this dizziness and almost like an intense fear--like something wrong in my head. I called TAP Pharmaceuticals and they blew me off. Nobody will give me answers. Can someone help me? Will this dizziness go away? i can deal with the other side effects (gastrointestinal, severe acne, etc). I can't go to bed without tranquilizers. What have they done to us?
439 LynnHoffmannWIUSI am really scared. I took my second shot (11.25--3 month dosage) of depot lupron in October. I have continued to get my period, as if I have never taken it. I also now have this thing where when I try to go to bed, I have this dizziness and almost like an intense fear--like something wrong in my head. I called TAP Pharmaceuticals and they blew me off. Nobody will give me answers. Can someone help me? Will this dizziness go away? i can deal with the other side effects (gastrointestinal, severe acne, etc). I can't go to bed without tranquilizers. What have they done to us?
440 LynnHoffmannWIUSI am really scared. I took my second shot (11.25--3 month dosage) of depot lupron in October. I have continued to get my period, as if I have never taken it. I also now have this thing where when I try to go to bed, I have this dizziness and almost like an intense fear--like something wrong in my head. I called TAP Pharmaceuticals and they blew me off. Nobody will give me answers. Can someone help me? Have any of you experienced this? Will this dizziness go away? i can deal with the other side effects (gastrointestinal, severe acne, etc). I can't go to bed without tranquilizers. What have they done to us?
441 derekbrownMNUSYeah F*%@ lupron...this shit has ruined my mothers health and i hope the bastards responsible for her and any other womens health depletion meet some Karma
442 BeckyMcCollowMNUS
443 CindySimmonsCAUS
444 CaroleGauthierFLCAI am a Lupron Depot victim and you can see my web site at carolegauthier.com.
445 NancyHayesMAUSIt has been over 10 years since my last Lupron injection and each year I become worse with so many symptoms it would take too long to tell my "story" Thank you
446 NicholeFrenchALUSI took one injection of lupron this past october. 2 days later I awoke in severe joint pain to the point my husband had to carry me to the bathroom and doctor. When I complained to my ob/gyn who administered it I was told not from lupron and to find another doctor. I now suffer from migraines, severe debilitating joint and muscle pain, forgetfullness, chronic fatigue. My endometriosis is still a stage 4 and the lupron intensified my endometriosis pain tenfold. i still suffer daily and have sense applied for disability.
447 AnonymousAnonymousMTUSSeveral years after Lupron I suffer severe joint pain. It has ruined my life. Please find out what this drug has done to all of us and define a treatment. For those of you thinking about taking this drug...the only one who is looking out for your interests is you. The only thing keeping you from becoming like me is your option to say NO. I strongly suggest you employ it.
448 samuelasouthNCUS
449 AnonymousAnonymousNCUSDITTO!DITTO!DITTO! chronic joint pain, brain fog, fibromyalia, and on, and on since taking Lupron 6 yrs ago! And it just keeps getting worse.
450 KristinaPhillipsGAUSThe Lupron is a lie.It doesn't stop the pain at all!Why give the shot if it causes more issues?

 

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