| # | First Name | Last Name | State | Country | Comments |
|---|
| 351 | Adrian | Gustafson | MN | US | Not only did I have terrible side effects, but I was told that endo could not grow during the duration of the drug. Guess what? I was still at stage THREE after the months of Lupron. Additionally, I had great pain with it (which I had never had before), that ended when I went off the drug. |
| 352 | Lori | Roberts | NV | US | I am on my 3rd shot for endometriosis. I am scheduled to be on this Rx for 6 months. I am currently breaking out in hives, off and on. I also have had low bak pain, which I figured was just from lifting my two very young children. I also have a hard time remembering things...but again...thought it was more than likely just from being tired. After reading all of the above, I am pretty sure the back pain is not just from the kids...and not being able to remember things is not just from being tired! Wondering if anyone else has had similar hives, swelling of a portion of the my mouth/lips?? |
| 353 | Lisa | Giampaolo | CT | US | I was diagnosed with endometriosis and was told to go on Lupron. After researching it I decided not to take it. My doctor was angry with me and said I was making something out of nothing - the "add back" therapy would solve everything. I believe I avoided I lifetime of potential health problems because I decided to do some research. I want everyone to have the same information to protect themselves because the drug companies and many doctors aren't doing it for us. |
| 354 | lydia | pietz | MD | US | am an RN--father experiencing crying, breathing and swallowing difficulties; Dr. administered without permission |
| 355 | Princess | Speights | GA | US | This drug should be banned. It did not help me at all. It only made me worse. |
| 356 | Anonymous | Anonymous | TX | US | horrible side efects |
| 357 | nikkie | clark | FL | US | |
| 358 | Anonymous | Anonymous | MI | US | |
| 359 | Jessica | Marselle | IA | US | I have mild endometriosis and this has been suggested as my treatment. I am horrified by the things I have read and thankful that I haven't begun the treatment yet. Thank you all for posting this information. I do not think I will be taking this drug. |
| 360 | Gail | Wagner | DE | US | I was involved in a 6 month round of Lupron shots. I gained 20 lbs in 6 months and still have it. My hands, nose, chin turn red & swell if they get cold. I am experiencing a lot of joint pain which from the other postings may be linked to the Lupron. I also think that it disrupts the normal function of the Thyroid |
| 361 | Anonymous | Anonymous | ND | US | About a week or so after one shot of Lupron Depot I had such bad pain in my hands and feet I couldn't sleep. I did not continue with any more shots but still have pain in the joints of my fingers and toes. The shot I had was in May 2007 and it is now the end of July 2007. |
| 362 | Katherine | Boyden | NC | US | |
| 363 | M | Z | WI | US | NEVER TAKE LUPRON. It made my endometriosis grow and my pain much worse. I have severe joint and muscle pain. Severe insomnia. DON'T TAKE LUPRON IT WILL RUIN YOUR LIFE. |
| 364 | Jessica | Lounds | MI | US | I am 26 years old. I have now gone through THREE rounds of lupron for Endo. At 19 years old I had the choice of having a baby right then or take lupron so i could have babies later (no longer see that dr.) So I took Lupron and yes the pain got better. then worse, so i took it again, three rounds total. I have now found that the doctors can not find any endo. or and signs i have ever had endo. I have been off the drug for over 2 years now, I still have hot flashes, night sweats, depression, anxiety, weight problems, joint and muscle pain, and best of all I lost over 1 full cup in breast size. I also lost about 30% of my hair with each round of shots, leaving much to be desired. The dr. still not sure I will be able to have children because since I took Lupron, t never leaves your body. Many places wont even let me donate blood now. If you cant even donate blood, then the drug should be taken off the market. This drug ENDS peoples lives, and makes us feel useless and less of a person than we started out to be. |
| 365 | Anonymous | Anonymous | TX | US | Took Lupron 12 years ago when I was 21 and developed hypertension following the 1st injection, was started on bp meds and continued with the 6 months of treatment, being told my bp would return to normal afterwards. 12 years later I am still taking bp meds and recently started having neurological problems with my arms and legs , weakness and numbness. That is what brought me to this site and it looks like I am not alone. |
| 366 | Kerri | Maloney | WI | US | I started Lupron injections in November of 2006 for endometriosis. I only had two shots one in Novenber and one in December before I could no longer handle the side effects. I have had surgery for the endiometriosis and was using Lupron as an alternative to getting a hysterectomy. I have been recently diagnosed with two aneurysm's. My husband and I both believe that they are from the Lupron injections. In June of this year I went to the doctor after having stroke like syptoms. My left side of my body went heavy and I couldn't see folllowed by vomiting and the worst headache ever. Now I am faced with surgery to prevent the aneurysm from rupturing. This drug shouldn't not used at all - there needs to be an investigation on this drug. I have three children at home and now have the horrible reality of the possibility I could die from my a ruptured aneurysm. I was fine until receiving the Lupron injections. |
| 367 | Kirstan | Stritch | NJ | US | I have been experiencing degenerative neurological symptoms since taking Lupron 10 years ago. Pain has become a regular part of my day. |
| 368 | Anonymous | Anonymous | AL | US | Wish I had never taken that one injection of this horrible drug 8 yrs. ago. I missed 3 mos. of work at the time, but still take anti-depressants & meds. for anxiety and sleep. THE DRUG NEEDS TO BE BANNED. |
| 369 | Anonymous | Anonymous | MO | US | I HAVE long term side effects from Lupron. It has been 2 1/2 years since my last shot and my mood swings are all crazy and my metabolism and sex drive are still very slow |
| 370 | roneshia | hynson | NC | US | the medicine made me loose hair,personality change,and it destroyed my marriage. |
| 371 | Judy | Martin | MI | US | Took Lupron in the late 90s,warned by my /dr. that I would have symptoms of menopause, It was horrible, migraines heart palpitations, depression,sweats, thought I was losing my mind anxiety attacks that landed me in the heart drs office. I had took a new job and had to leave the position because my memory was so bad that I could not learn the job, I have memory loss to this day, my sister also was treated with this drug and has memory loss.I also developed a lump in my breast that had to be removed and biopsied during my lupron therapy. HELL |
| 372 | KATHY | CALLOWAY | TX | US | MY DOCTOR WANTS TO PUT ME ON LUPRON FOR THREE MONTHS. AND I'M READING UP ON IT AND SO FAR IT SCARES ME. CAN SOMEONE WHO HAS TAKEN IT PLEASE CONTACT ME AND TELL ME WHAT LUPRON HAS DONE TO AND FOR YOU!!!! MY E-MAIL IS KMCALLOWAY@HOTMAIL.COM THANK YOU |
| 373 | Annette | Geels | | | |
| 374 | Donald | Cook | TX | US | I took one lupron injection three months before my dr. froze my prostate because of advanced prostate cancer. That injection was in April 07. My throat has been sore below my larnyx and a constant dull pain. |
| 375 | Anonymous | Anonymous | CA | US | Lupron ruined my life and I would hate to see other women go through what I went through. Before it was confirmed that I had endometriosis the docs were trying to push it on me. They said "if it helps, then we know you have endo without going through surgery". HOW RIDICULOUS IS THAT??? Give a medication in case you have a disease to confirm if you have a disease. After 5 years of severe endo pain and after my 3rd surgery I was desperate & had only 1 lupron injection. Not only were the hot flashes unbearable I almost lost my entire family and fiance because of my violently erratic mood swings. Then after that it threw me so out of whack that I have had fevers, swollen face, severe bodyache, fatigue everyday & other strange symptoms for the past 2 years with doctors putting me through painful tests for cancer and other serious ailments. It ruined my wedding because I was so sick and had such a big swollen head and fever and I am so scared that it did permanent damage. They are now giving it to young teenage girls who they just suspect have endo and I want this drug to be taken off the market for it's off-label treatments and the automatic treatment of endometriosis. |
| 376 | Anonymous | Anonymous | MN | US | I was treated for 5 months in 2004 for endo. I now suffer from aching hips, legs, ankles, and now knuckles. I've also notices slight memory loss. Recently I have noticed that my symptoms are growing worse. I have always wondered if this drug had any connection with my symptoms but never did any research on it until now, I am absolutely frightened by what I have learned! At the rate this is progressing, am I going to be using a cane or wheelchair in my thirties? As it stands now, I have alot of pain in my lower body after sitting down for just a short time which makes it hard for me to stand up while holding my 3 month old son. Im scared to death of what this has done to my body! |
| 377 | Anonymous | Anonymous | TX | US | I have a total of 8 shots of Lupron now. First six weren't too bad, just hot flashes & weight gain; but these last two are killing me. My bones and joints hurt and I have hold/cold flashes, dryness and am an emotional rollercoaster. HELP! |
| 378 | GEORGIA | SALOMONSON | MN | US | THANK YOU FOR YOUR PETITION--I JUST HAD A LAP DONE TO CONFIRM THAT I HAVE ENDO--THE DR HAS BEEN TRYING TO PRESSURE ME INTO TAKING THIS DAMN LUPRON SHOT--THANKS TO EVERYONE--I WILL NOT BE THE NEXT VICTIM--IF I WANT TO GO THRY MENOPAUSE--THE DOC BETTER GIVE ME A DAMN HYSTERECTOMY--THANKS AGAIN!!! |
| 379 | Kelly | White | OK | US | I was given lupron to treat endo in May of 2006. and placed on it again in June of 2007. I have had horrible side effects. Bone and Joint Pain, muscle spasms, fatigue. This drug needs to be researched more, and more people should be aware of the problems it can cause. |
| 380 | Jodi | O | TN | US | I am in my 2nd month of LUPRON, and I am experiencing several side effects. Im losing my hair, i have mood swings, pain and swelling in my legs feet and hands. My feet go numb, i have severe migraines, im shaky all the time, i only get about 3-4 hours of sleep a night, no appetite, and its almost like i have amnesia (there are days i cant remember anything at all) IM SO MISERABLE. I will never agree to take this again. |
| 381 | Cherise | Petker | CA | US | I am 26 and cannot walk right now and am having problems typing due to the extreme bone/joint pain from this drug. We all know now that there is a irreversible side effect of bone loss. I have been refusing this drug for sometime due to the horror stories about the joint pain. My OBGYN said I would not have this side effect due to my age and since I would not take it longer then 6 months so I finally took it due to the pressure. I ONLY got a one month shot and here I am bed ridden! This drug may have a crippling effect for life - why on earth is this FDA approving this and why are ALL the docs pushing this....I smell greed behind this! |
| 382 | Tanya | Hoff | MN | US | I Have received 1 shot of depo lupron for endo. Nothing good has come out of it night sweats, fatigue, hot flashes, nausea, hives, the moodswings and many more. I highly recomend that this drug be taken off the market.I am 28 yrs old I should not have to feel like this everyday. |
| 383 | Anonymous | Anonymous | IL | US | I am currently receiving my third and final round of lupron before having a hysterectomy. I have a severe case of endometreosis. I was complety unaware of all of the possible side effects. I knew bone density loss was possible and have increased my calcium and vitamin intake. I pray someone will do more research |
| 384 | Anonymous | Anonymous | | PR | I experienced mood swings, migraines |
| 385 | Anonymous | Anonymous | AL | US | I was advised by my doctor in florida for a 6 mos treatment of the lupron shot to treat my endo. 2 months after my last shot I began having seizures. I believe this med may be the cause. I am investigating...stay tuned |
| 386 | Anonymous | Anonymous | NJ | US | The terrible terrible bone and joint pain I had during my last 3 months of the shot my Ob swears it was not related. My Main Dr. says yes.
More research
More research |
| 387 | Anonymous | Anonymous | NJ | US | I took 2 injections in 2002. I continue to suffer from bone & joint pain, diagnosed with arthritis, osteoporosis, and neuropathy since taking Lupron. This is a drug that no one should take regardless of what the doctor tells you. The best part is that no doctor will side with you that Lupron caused these problems. |
| 388 | melissa | blanton | OH | US | I took lupron injections about 4 years ago. Iwas willing to try almost anything to rid myself of the pain from endo. The side affects during the injections were tolerable though not enjoyable. In jan.05 I had 2 stents implanted at the age of only 40. Then in March of 07 I developed severe pain in neck spine. Mri found buging disc, cervical stenosis, degenerative disc disease. My legs hurt sometimes it is hard to even get through the day. Horrible never should be administered. |
| 389 | Anonymous | Anonymous | MA | US | I finally gave in and took a 3 month shot this past December prior to my 5th surgery for Endo. I was in and out of the hospital with heart palpations, insomnia, I was diagnosed with Fibromyalgia 7 years ago and this made the pain so unbearable! I have been working with the same company for the past 8 years, and because I called out twic in July once to see the surgeon for the pain and the second to see PCP for what happened to be migraines. My job decided to place me inactive and stopped my pay immediately. So now with all the pain now continuous migraines lot of different meds can't pay the bills. I was told that my only options at this point are hormonal therapies due to adhesions so hysterectomy would not be good. I have been on the couch for a month and have a hard time driving and just want to cry all the time. |
| 390 | Maura | Walker | PA | US | I have been on lupron for 6 months now and must admit it has not been easy. I have stage 4 endometriosis and must admit the lupron took away my chronic pelvic pain so I am now capable of walking upright but it left me with alot of other problems. The hot flashes and nightsweats are rough but bareable whereas the joint pain,memory loss, and mood swings are much more severe. I would love to know more about this drug and hope that the long term effects aren't as severe as I fear. |
| 391 | Alison | Morel | NH | US | I previously did two 6 month rounds of Lupron and a 3 month round. |
| 392 | Anonymous | Anonymous | SC | US | I'm 36 and I had the lupron shot about 4 weeks ago. I went to the Dr with the worst headache of my life nausea and vomiting. Here I'm up since 12 midnight with cold sweats and spasm all over the body. they are so bad they actually jerk me off the bed.this is my second day without sleep and I feel helpless |
| 393 | Anonymous | Anonymous | CA | US | I am so glad I was lead to this site. I have been having severe knee joint, ankle and leg pains. I was wondering what is wrong with me. I can barely walk. Thank you all for the information. Yeah, I am not having a period but gosh, this pain is crazy. I was informed about the hot flashes but not the body aches. I feel like I have a bad case of the flue. |
| 394 | Anonymous | Anonymous | CA | US | I am currently #382 petitioner, this is simply an update showing woresning side effects. Crutches do not cut it any longer as the bone/joint pain are in my wrists, back, neck, forearms and fingers (which paralyze for a couple of minutes if used too much). Lastly, the whole point why we get this injection is to stop bleeding. I got my period 3 weeks after the injection and it was painful and long as normal! |
| 395 | Heather | McCormack | WA | US | Not only did Lupron not help with my pain, but it cause three months of bleeding, such intense dizziness that I couldn't drive and I still have short term memory problems after the 3 month shot I received in February! This was supposed to be a miracle cure for me....I finally went with the hysterectomy! |
| 396 | Cassandra | kenyon | PA | US | I aslo have been on lupron shot for 8 mths
worse decisons i ever made in my life . im 29 yrs old and i also have endometriosis i have had very side effect and more about 3 mths ago i was diagnosed iwth possile haveing a partial stroke my handw were numb , i went to the er and the doctors there couldnt believe me very mth the company from lupron calls me , i had to go see a neurologist they kept saying clot clot clot
well mmy mra shoed i have an anuresym in my miidle cerebral artery
in my brain , i was healthy , energized and had a life , these shots destryoed me.
now i have a brain anuresym and all sorts of problems these shots shots should be banned
anyone want to talk email me or anyone who has gotten an anuesym or simulat effects email me at ctinkerbell78@verizon.net |
| 397 | Sharon | McCall | NC | US | For what I beleive this drug has done to me as well as my family, I would sign anytime. |
| 398 | LOUISE | GRIFFITHS | NJ | US | I am petitioner #388. I suffer daily with bone and joint pain, arthritis & neuropathy since taking Lupron in 2002. I was thinking that since no doctor and/or attorney will listen to us, why don't we put our e-mail addresses in this petition so that we can communicate with each other within our state and maybe if we got enough people together we could try and contact an attorney as a group. If anyone out there thinks this could be a plan, please e-mail me at Louisekatlvr@optonline.net. |
| 399 | LOUISE | GRIFFITHS | NJ | US | I am petitioner #388. I suffer daily with bone and joint pain, arthritis & neuropathy since taking Lupron in 2002. I was thinking that since no doctor and/or attorney will listen to us, why don't we put our e-mail addresses in this petition so that we can communicate with each other within our state and maybe if we got enough people together we could try and contact an attorney as a group. If anyone out there thinks this could be a plan, please e-mail me at Louisekatlvr@optonline.net. |
| 400 | Vicki | Payton | OH | US | I used Lupron for a year, before I had a hysterectomy in 1998, but are displaying many of the side-effects today. Joint pain and swelling (which they tell me is fibromyalgia), depression, anxiety, hair loss and growth (in all the wrong places), degenerative disc disease and bone density loss, weight gain, heart problems and other medical problems. I have an immune problem. I am now disabled, and fighting to get my disability. I feel my medical problems could be partly attributed to the Lupron. Nobody warned me about the side effects. Due to my health, I've been doing research on my own and plan to present it to my doctors. |
