| # | First Name | Last Name | State | Country | Comments |
|---|
| 301 | Anonymous | Anonymous | AK | US | This is an awful drug and I believe it caused me to have an uterin prolapse |
| 302 | Sandra | Lucas | AK | US | I took lupron for 6 months for migraines. the migraines were worse, the memory loss is bad, and Now I always have aches and pains, very hard to go on walks with my daughters and grandkids. and I am only 44 y/o. Since my round of lupron my teeth have gotten brittle and break constantly, and I don't have energy to do much. This drug should have never been put on the market. |
| 303 | Anonymous | Anonymous | CO | US | I took Lupron in 1994, I suffered for years with terrible migrains, numbness in my hands, and overall body aches. My endo is back and my doctors want to put me on it, and I keep telling them how bad it is, and they don't believe me. |
| 304 | Kristen | Rupp | VA | US | I am supposed to start my first Lupron injection next week. I have done lots of research online about this drug and endo. I have found not even a handful of people who have anything good to say about this drug. I'm extremely scared and nervous about taking this especially being a single mom to a 3 year old. My doctor won't do a hysterectomy because I'm only 25 years old but I can't have anymore children. I think a hysterectomy would be a better solution to this problem than throwing people on this drug that to me sounds like it can kill you. After all, it was developed for prostate cancer in men. That tells me that this drug is extremely toxic to bodies just like chemo would be. On top of all of the horrible side effects, this drug is extremely expensive and I can't really afford to even take it. What other options are out there? I have been on birth control pills but they haven't done anything. I live off of narcotic pain pills for two to three weeks every single month because the pain is so bad... I have no idea what to do. Anyone that can help please email me at vagirlinsc23@yahoo.com...All suggestions are greatly appreciated!! |
| 305 | Stephanie Rae | Lucas | AK | US | I started taking lupron when I was 16 y/o after being diagnosed with endometriosis.
I was told that the Lupron injections would help me with the endometriosis. But that wasn't true, my endo got worse.
After the 1st round of Lupron i started feeling really sick, I didn't have the energy to go to school, work ,
or to spend with my family. After the 2nd round of Lupron my teeth have gotten brittle and break constantly.
I am having problems with weight control,gained over 50 lbs since i started taking Lupron. I have memory loss.
I have had many problems with disc, muscle, joint and bone problems. This drug should have never been put on the market.
I'm only 21y/o i'm afraid that with all the problums i have from the side effects i won't get to have kids or if i do have kids i'm afraid that i won't get to see them or there kids grow up. |
| 306 | Anonymous | Anonymous | IL | US | |
| 307 | Kim | Bernhardt | IN | US | I received 6 monthly injections of 3.75 mg. Lupron back in 1996, after having laproscopic laser surgery for my endometriosis. The experience was an absolute nightmare for me. I started having joint pain, migraines (in which I could not find relief with medication). My abdomen became distended, I had terrible hot flashes. It changed my personaility. I cannot easily recall names. My mind just does not work the same. I gained about 8 lbs. during the six months I was on therapy. Just a month after my last injection, I was examined by my OB/GYN and was found to be ovulating. I was told to try to get pregnant. I did become pregnant my first try after this therapy. However, before I even knew I was pregnant I blew up like a balloon. All over, my shoulders, arms, breasts (this was unusual for me (because I never carried upper body weight. I went up 10 lbs. over a weekend. I know this sounds unbelievable but it is true. I ended up having an intrauterine fetal demise by the second month of conception, followed by a D & C. I have never been well since. I am now on disability, after being a nurse, which I had enjoyed, until the Lupron injections started. I absolutely hurt all over. I have been diagnosed with fibromyalgia. I do not believe that is what I have. I do have the tender points, but I hurt everywhere. I hurt a lot in the fatty areas I developed around my upper back area(where my bra is.) The skin on my legs feel tight as if the skin could tear. The skin on my legs even feel tight when you touch them. I have low back/hip pain; However, I had low back problems before taking Lupron. In August, 2003 I had a complete hysterectomy with an oopherectomy for my endometriosis. I had numerous laproscopic surgeries for my endometriosis after the Lupron therapy. Prior to my hysterectomy, I did become pregnant again in August of 1997, and had a healthy baby boy. I am very grateful for him. But I haven't been able to enjoy him the way I had always hoped to because of my ongoing symptoms. It causes me pain if we are just on the couch and he leans on me in the wrong places. After the birth of my son, I became pregnant again in September 1999, and also had an intrauterine demise. I was found to have a factor V deficiency (Leiden Mutation) after my first pregnancy loss. They do relate this blood disorder to pregnancy loss. I believe that the Lupron did something to my lymphatic system. Naturopathic doctors and physical therapists have commented that I feel and look like I have some type of lymphedema; however, I haven't had a medical doctor diagnose this. I just wish I could get well. If anyone out there has had any of these same problems, I would love to hear from you. I also have a lot of tenderness in my arms, upper, around my elbows and forearms. I would love a cure from the symptoms I continue to have since I was on Lupron. |
| 308 | Anonymous | Anonymous | OH | US | I had Stage 4 Endometriosis, laparoscopic surgery to remove. The recommendation was to go on Lupron as a precautionary measure to control the Endo from returning.
I had the first injection 10 days ago and ended up in the ER. I am on day 8 of my second period of the month - the bleeding is unlike any I have ever experienced.
The side effects have been horrific for me - severe headache, blurred vision, hot flashes, night sweats, extreme anxiety and nervousness, difficulty concentrating and memory issues. The trip to the ER was because I felt like my heart was going to come out of my chest and I was having extreme difficult finishing a full sentence or remembering what I was trying to say. I am very depressed today and they have me on valium to try to control the anxiety. I've missed 2 days of work and feel like I am going out of my mind. |
| 309 | Anonymous | Anonymous | CA | | I am 40 years old and was on Lupron from July-December 2006. It is mid April 2007 and I have yet to get my period. Aside from that, I have experienced a noticeable fatty hump on my upper back since I began treatment last July. I've also had severe memory loss and have started to take Effexor for depression. I am so shocked by the physical and emotional changes I've been through the last 9 months. I am starting to do more weight bearing exercise to gain muscele back, which I noticed I lost in my legs especially. I feel cursed by this. I think the Lupron did get rid of the level 4 endo. However, it will come back as soon as I strart my cycle, which I'm goin to jump start my taking Provera. |
| 310 | Gordon | Berg | FL | US | I'm a 79 year old male diagnosed with prostate cancer in 11/06. In Dec. was given a one month injection of Lupron followed in Jan by a 4 month injection. About three weeks later I started having dangerously high spikes of blood pressure sending me to the ER several times. About a month later and several increases/additions to BP medications it was brought under control. Am being treated at a world famous clinic and the oncologist claimed he was not aware of this as a side effect. About 6 weeks after the 4-monther I started getting debillitating pain in the toe joints of a foot.Again, the oncologist had never seen this as a side effect and thought there was no connection. Saw a Podiatrist recently and got a cortizone injection in the area which has not helped much. Am due for another Lupron injection in May but unless pain subsides will not take it. |
| 311 | Gordon | Berg | FL | US | I'm a 79 year old male diagnosed with prostate cancer in 11/06. In Dec. was given a one month injection of Lupron followed in Jan by a 4 month injection. About three weeks later I started having dangerously high spikes of blood pressure sending me to the ER several times. About a month later and several increases/additions to BP medications it was brought under control. Am being treated at a world famous clinic and the oncologist claimed he was not aware of this as a side effect. About 6 weeks after the 4-monther I started getting debillitating pain in the toe joints of a foot.Again, the oncologist had never seen this as a side effect and thought there was no connection. Saw a Podiatrist recently and got a cortizone injection in the area which has not helped much. Am due for another Lupron injection in May but unless pain subsides will not take it. |
| 312 | Candace | Hargis | KY | US | In case any of you don't know this, there is a law suit against ortho evra, the birth control patch. I am in the process of writing a book about endometriosis and all the horrible side effects to all the treatments they have pumped me full of over the past 2 years. I've been on 4 or five different kinds of birth control pill, the patch, then on the depo shot where I bled for three and a half months straight and before the depo ever wore off, they gave me a three month dose of lupron. go figure. I feel like a walking chemical warzone. Anyway I would like so much to get the word out about how horrible all these treatments are and how they destroy lives when they start messing with your hormones. I wanted a hysterectomy but they wouldn't do it and a month after they gave it to me, I went on a downward spiral, my thoughts got all screwed up, my grandmother died, my boyfriend broke up with me, I got myself off the pain meds they kept me on and then I had to give up my daughter temperarily to her father because I am not stable enough to take care of her. And let me tell you when you hurt so bad and nothing else works, alcohol can be a very dangerous place to find relief. I am really glad I found this because I have to get the word out. I have a website up on myspace.com called endoemotion so if anyone is interested please go and put all this on there on whatever you feel like. I would appreciate the help.
thanks again for whoever started this. |
| 313 | Monica | Vanderveer | TX | US | After taking lupron shots for endometriosis, I went through menopause PERMANENTLY. |
| 314 | Naisha | Scott | AZ | US | I took Lupron in 2002 it was the worst thing I could off did , I have disc bulging pain in all my joint knees, ankles and elbows and my breasts swell , hot & cold flashes, had to have a hysterectemy at the age 27 and was out of work for 6mth had bulging disc, I now have a chronic back pain and arthritis ,and I am only 29yrs of age what did the FDA do to us all |
| 315 | Anonymous | Anonymous | | CA | I'm frustrated and angry. doctors can't find anything wrong with me medicaly but the pain is unbearable. Overall body pain, joint pain,migraines,chest pains. I've been to the emergency many times,have undergone many tests. I'm taking strong pain killers my only temporary relief. please let us do something about this problem. I WON'T STAND FOR THIS. Doctors don't want to admit it is th lupron. Please help me and all the victims ot there that are suffering from lupron depot A POISON allowed to continue to destroy peoples lives. i believe it is out there to make money.I don't want anyone else to suffer. stop this drug please! ' |
| 316 | Lisa | Gonzalez | MD | US | After only three months of therapy I only sleep 2-3 hours a night and am suffering from meory loss, lack of focus, hot flashes 20 times a day, sever headaches and joint and muscle pain. The potential for serious debilitating side effects cannot be overemphasized. I am stopping and will seek pain managment for my endometrial symptoms. Do not take this drug. |
| 317 | D ebra Debra | McCorpin | TX | US | 1998 i was giving 6 monhs of this lupron depot.dr. told it did'nt have side effects i can't work ant more thanks this drug i fore get things i have bone pain,cant sleep at night my life has been turn up side down my husband worries about me all the time 2yrs ago i started having sizures that is very scary to go throught.this drug just may kill someone i've lost some of eye sight back pain hippain
ringing in my ears i am not able work any more |
| 318 | Anonymous | Anonymous | TX | US | 1998 i was given 6 months of this lupron depot. dr.told it did'nt have side effects i can't work any more thanks this drug i forget things i have bone pain,cant sleep at night my life has been turn up side down my husband worries about me all the time 3yrs ago i started having sizures that is very scary to go throught. this drug just may kill someone i've lost some of eye sight back pain hip pain
ringing in my ears i am not able work any more |
| 319 | Carmen | Hernandez | | PR | I took Lupron for several months and the side effects were horrible. I was diagnosed with a Major Depressive Disorder due to the medication and I gained over 30 pounds, among many other side effects. Please it is the responsability of the doctor as well as the pharmaceuticals to inform the paciente. |
| 320 | Melissa | Aberson | IA | US | |
| 321 | Leslie | Walker | AZ | US | I was treated with Lupron for a total of 9 months in my early 20's for treatment of severe endometriosis. I am now 34 and have horrible joint/bone pain in my hips. PLEASE do not take this drug! |
| 322 | Anonymous | Anonymous | FL | US | |
| 323 | Maria | Batea | | FR | Please sign the Lupron petition adressed to the european FDA:
http://www.petitionspot.com/petitions/LupronVictims |
| 324 | Colleen | Brown | OH | US | I'm 31 years old and ruined my marriage due to the depression caused by Lupron. This drug should be banned!!!! |
| 325 | Mary | Hoffman | OH | US | Lupron can have very serious side effects. The side effects can last long even years after stopping the drug. |
| 326 | Anonymous | Anonymous | AR | US | I am being affected by the Lupron injections and I WOULD NOT advice anyone from getting them. |
| 327 | Vivian | Francisco | NJ | US | |
| 328 | heather | plunkett | VA | US | This drug has caused nothing but problems...it has been the worst "roller-coaster ride" of my life. I was not made fully aware of the emotional side effects that took place. I can handle nightsweats/hot flashes but the high anxiety, hopelessness, & suicidil thoughts are the worst!!!I am usually a very outgoing & bubbly personality. The drug totally changed my personality. I had 3 injections...I basically bled the whole time on lupron (except for 2 weeks). I went off the injection therapy & it the best decision I have ever made....I want my life back....It was 90 days of hell on earth... I also believe that when I informed my doctor/nurse that I was scared by my side effects, I was not taken seriously....this drug needs to go!!! |
| 329 | Ronda | Moncada | VA | US | |
| 330 | Ronda | Moncada | VA | US | |
| 331 | Paula | Buie | MD | US | Very bad side effects. Dr's don't understand. |
| 332 | Shauna | Guthrie | WA | US | I only had 1 shot of Depo Lupron in 2000 and that was enough. I've had numerous side effects including memory loss, weight gain, depression and feeling like I'm going crazy; to name a few. Doctors don't beleive anything is wrong with me and family and friends think I'm a hypochondriac. I just want someone to believe me and I want to feel better. |
| 333 | Anonymous | Anonymous | MO | US | I was to take Lupron for six months for endermetreosis and in the fifth month of the shots I developed serious bruising on my legs and arms. I would get these bruises from the slightest bump or if my dog would jump on me. The bruises wouldn't go away and I kept getting more of them. I had so many bruises I looked like a leoprad. I went to my OBGYN and showed them and the last dose was canceled. I was recommended to see my family physician, which ordered a cbc. My platlets were so low that I had to see a Hematologist and go on steroids. I had to do a bone marrow biopsy and it came out fine. I had to take steroids for approx. six months and get cbc's twice a week. The steroids weren't working and my platlets were so low I was at risk of hemorrhaging and had to have a transfusion of winro (platlets) and a spleenectomy. I had to continue with blood work for a year. I was recommended not to get pregnant for a year. After a year I got pregnant with my first, my pregnancy was monitored closely and the baby was born fine. The second pregnancy I wasn't monitored for the Immune Thrombocytopeni Purpura (ITP), but my baby was born with the anitbodies that were still floating around in my immune system and he hemorrhaged from his circumcision and had to go on steriods till the antibodies passed out of his system. I almost lost him, he was hemorrhaging and the hospital staff didn't tell me because I had a spinal headache and they didn't no what was going on even though I had the same doctors (OBGYN and Pediatrician). My baby was transfered to the Children's Hospital and our blood was analyzed. The third pregnancy was monitored and considered high risk and I had a immunglobulin transfusion during the last months of my pregnancy. Baby three was born with low platlets which started to drop after he was born and a circumcision couldn't be done till he was two months old. I believe the LUPRON compromised my immune system. I was 100% healthy before the shots. The nurse started off rotating the shots and then didn't chart which hip she had done and I didn't remember, because both hips were sore. So she said it didn't matter and started giving me the shots in one hip. I believe this caused problems with my immune system and passing to my babies. |
| 334 | Lisa | Perez | TX | US | I took 3 shots in 3 series. I have had severe joint pain in my back. I could not bend over to brush my teeth or towel dry my hair. My knees creak and ache constantly. I have tingling and swelling in my feet and hands. I told my family Dr about the shot given to me by my ob/gyn. He did not believe me, he said I have early stages of arthritis and prescribed a pill for arthritis which helped my back some but I still have all the other side effects. |
| 335 | Janet | McFarland | TX | US | I am on Lupron and I am having major side effects....They didn't explain to me before I got these shots how bad the depression was going to be or the headaches.... |
| 336 | Anonymous | Anonymous | IN | US | |
| 337 | Anonymous | Anonymous | CA | US | treated with lupron from may 07 for fibriod therapy two weks later noted changes in personality, depression, insomnia, lack of appetite wt lost,skin changes. please don't take this posion read side effect first. lupron is a bad drug.you may cantact me atpokuafriyie@hotmail.com |
| 338 | Theresa | Kimbrough | CA | US | 15 months of Lupron. Lost hair, vision, brain matter. Gained 73 pounds in 6 weeks, throwing up the whole time. Continue to have nerve and bone pain. |
| 339 | Theresa | Kimbrough | CA | US | 15 months of Lupron. Lost hair, vision, brain matter. Gained 73 pounds in 6 weeks, throwing up the whole time. Continue to have nerve and bone pain. |
| 340 | Rebecca | Johnson | VA | US | At the age of 21, I had two surgeries to remove cysts caused by endometriosis. The second surgery came 6 months after the 1st one. Instead of waiting 6 more months to see if it came back, my doctor put me on Lupron for 6 months. It has been three weeks since I have taken my last Lupron shot. I have really bad hot flashes and mood swings. Other than that, the symptoms/side effects have been very minimal. Because I read before that a side effect could be a loss in bone density, I have taken a calcium pill each day and have not experienced any bone pain. I also work out at the gym three days a week, which I think has helped. Overall, Lupron has served me well! |
| 341 | Travis | Cooper | | AU | |
| 342 | lynne | m | PA | US | I GOT SHOTS OF LUPRON DEPOT IN 1997. A FEW MONTHS BEFORE SURGERY. THE SIDE EFFECTS ARE HORRIBLE!!!!!! I AM SO SORRY I TOOK THE SHOTS!!! LUPRON DEPOT NEEDS TO BE TAKEN OFF THE MARKET !! HOW MANY LIVES DOES IT GET TO HURT BEFORE SOMEONE DOES SOMETHING ABOUT IT? |
| 343 | April | Johnson Orr | WI | US | I went through 6-1 month injections of Lupron in 2003 to try and prevent the return of endometriosis. The side effects were awful-night sweats, hot flashes, moodiness, general aches and joint pains, I cried often, and there were many times when my husband wanted to leave me (I don't blame him-I didn't very much like myself at that time either). Just had a Laparoscopy May 23rd to find out the endo came back anyway. What a waste-and who knows what side effects there are long term as well. |
| 344 | Jessica | Baumgard | MN | US | I took Lupron at age 18 under the advice of my gyno. She assured me that the only side effects I would have were night sweats and maybe a little weight gain. Two weeks after my first shot I started having horrible pain in both legs. I told my gnyo, she assured me this wasn't due to the Lupron and strong edvised I went in for another shot. I did. Its been 3 years and the joints in my legs ache all the time. My hips, knees and ankles don't feel like those of a 21yr old more like those of an 80yr old. I can say with no hesitation that Lupron has ruined any hopes i have of ever being pain free. |
| 345 | Erica | Leggette | VA | US | I took Lupron for 2 months and developed SEVERE joint pain virtually overnight. It affected my ankles, wrists, knees, and back. The pain was so excrutiating in my knees that I immediately stopped treatment and could barely walk without assistance. It has been seven months since I stopped taking this awful drug and although the pain improved I still suffer from joint pain. I have to take glucosamine daily and feel like I'm 70 years old. I'm only 26 and would NEVER suggest this drug to anyone. While I didn't have pelvic pain while on this drug, my pelvic pain immediately returned when I stopped. |
| 346 | Tessa | Raymon | SD | US | I took Lupron for 6 months, my doctor wanted me to take it for 9 months. After 6 months, I still had the pain, plus night sweats, felt sick all the time and bad moods swings. I stopped taking against what my doctor told me. Told her I would rather have just the pain, then the pain and the rest of it. |
| 347 | Anonymous | Anonymous | NC | US | This damn expermemental drug has destroyed my body. I now suffer from Diabeties, Arthritis, Fibromyalgia and various lung diseases. I am in continual sever pain. It is time to sue this manufacturer and all the physicians that participated in this clinical trial. |
| 348 | T | Ward | FL | US | 6/ 29/07
I was just diagnosed with endo two days ago after a lap procedure. On Tuesday I was to begin a series of three 3.75 Depro Lupron shots. THANKS to this petition I WILL NEVER TAKE THIS MEDICNE and save my health! THANKS TO YOU ALL! |
| 349 | Helena | Mrvova | | GB | Lupron is a GNrH agoinst. I had gone through a 6 months course of the same class drug, just a different trading name called Diphereline. It was shortly after being diagnosed with stage 4 endometriosis.
Side effects I experienced:
Hot flushes
Mood swings
Abdominal pain
Depression
Nausea
and lastly it escalated my endometriosis which returned immediatelly in a much more aggresive form.
I now refuse to take any prescribed drugs for my endometriosis! I changed my diet, I take natural progesterone cream (USP bio-identical progesterone) and my trust in conventional medicine overally is completely destroyed. I have never felt so cynical and repusled by the whole pharmaceutical industry before. |
| 350 | Anonymous | Anonymous | GA | US | PLEASE! PLEASE! HEAR OUR CRIES!! BAN THE USE OF THIS DRUG!! HOW MANY MORE PEOPLE (MEN&WOMEN) HAVE TO SUFFER NEEDLESSLEY SO THE PHARMACEUTICAL CO. CAN MAKE A LITTLE MONEY??? LUPRON WILL, DOES, AND WILL CONTINUE TO RUIN LIVES!! IT WILL CAUSE IRREVERSIBLE SIDE EFFECTS! WHEN A PATIENT TELLS THE DOCTOR ABOUT THE SIDE-EFFECTS OF LUPRON-WHY, OH, WHY WON'T THEY LISTEN?? SOMEONE PLEASE LISTEN!! WE ARE NOT CRAZY! WE ARE NOT HYPOCHONDRIACS!! WE ARE NOT DRUG-ADDICTED, DRUG-SEEKING, HYSTERICAL WOMEN LOOKING FOR ATTENTION!! GET REAL!! COME ON, BAN LUPRON, PLEASE!!!! |
