Tell a friend about this petition

Investigation into Lupron Side Effects

 

 

# First NameLast NameStateCountryComments
651 KimberlyDeeNJUSCont. . .I lost two of my very best friends while on this drug, friendships of 18 yrs ;>( No one seems to believe or understand, My anxiety levels have gone up & my endo only came back worse. Please someone needs to do SOMETHING. . . Lupron really destroyed my life & I am very afriad I will never get my memory back
652 KimberlyDeeNJUSCont. . .I lost two of my very best friends while on this drug, friendships of 18 yrs ;>( No one seems to believe or understand, My anxiety levels have gone up & my endo only came back worse. Please someone needs to do SOMETHING. . . Lupron really destroyed my life & I am very afriad I will never get my memory back
653 NaishaScottAZUSWell I'm Naisha Scott I'm petitioner # 271 #284 well I'm on the petition a lot. But I feel better then everyday today because I join a Lupron Support Group and they have post a Lawyer Sybil Shainwald in New York # 212-425-5566 and they don't mind us all calling about the Side Effects from Lupron. Please only call them about Lupron and what Lupron did to you They will be mailing me out a questionnaire about Lupron. She would like me to mail all my medical records to her office . So Please everyone call the Lawyer office and let them know what LUPRON has did to your life. I have called and called different Lawyer and I feel so strong about her. We need to make a change and I believe she can be our voices. PLEASE CALL THE MORE CALLS THE BETTER FOR US ALL. Love Naisha Scott
654 NaishaScottAZUSWell I'm Naisha Scott I'm petitioner # 271 #284 well I'm on the petition a lot. But I feel better then everyday today because I join a Lupron Support Group and they have post a Lawyer Sybil Shainwald in New York # 212-425-5566 and they don't mind us all calling about the Side Effects from Lupron. Please only call them about Lupron and what Lupron did to you They will be mailing me out a questionnaire about Lupron. She would like me to mail all my medical records to her office . So Please everyone call the Lawyer office and let them know what LUPRON has did to your life. I have called and called different Lawyer and I feel so strong about her. We need to make a change and I believe she can be our voices. PLEASE CALL THE MORE CALLS THE BETTER FOR US ALL. Love Naisha Scott
655 JenniferBerkeleyNJUSI took Lupron for 6 months in the early nineties. I suffered from numbness and severe palpatations, anxiety disorder, depression and body aches. I was being treated for endometriosis. Eventually at the age of 49 I had a hyterectomy. Today 7 years since the major surgery I am still suffering from the effects of the Lupron. I have fibromyalgia, osteperosis, migraines and depression. I do believe the Lupron is the starting cause of these lasting issues. Women need to be more well informed before taking Lupron. If you are young, it may impact the rest of your life.
656 KristaTaylorRIUS
657 KristaTaylorRIUS
658 KellyHagertyMAUSI was put on Lupron for only two months when I took myself off. I could deal with the out breaks of sweats..but the blinding headaches..lack of sleep and now worst of all the complete emotional break down is all to much! I feel crazy and my personal relationships have suffered. My work is effected and my entire life has been altered for the worse. I'm frightened to think that there could be more side effects that show up with each day. Something has to be done to get this drug off the market!
659 JacquelineSicaMDUSI 30 years old and went through 4 months of Lupron treatments and throughout the 4 months i kept getting worse pain. I started out having to take advil, eventually i was on heavy narcotics every day. I developed bladder problems that i had NEVER had before. Now 1 month post Lupron i'm having severe muscle pains and spasms. I wake up in the morning and i cna't move my fingers because the joints are painful and swollen. I'm a teacher and a coach and i've had to give up coaching. I was a Division I athlete for 4 years before this treatment. I was in the best shape of my life before Lupron. Now i feel as if i have the body of an 80 year old. PLEASE help us.
660 AnonymousAnonymousCTUSI started Lupron for an IVF cycle in July 07. After the second shot, I began experienceing severe back pain, and other joint pain with numbness, and tingling. Then came the panic attacks 24 hours a day. I kept telling my doctors something was wrong, and no one listend. Nine months later, I have an anxiety disorder due to Lupron, and fibromyalgia. Sometimes I think I'm going crazy. I hope I will recover. Does anyone know if the symtoms can be perminetn?
661 ColleenCraigGAUSI was given Lupron injections for 6 months due to endometriosis when I was 19. I experienced fainting spells, severe migraines, depression, awful joint swelling and pain, floaters and blurred vision, and I lost a 1/3 of my hair that never grew back.My skin, eyes, and scalp have been very dry ever since. I am now almost 26 and still have all these symptoms.
662 CrystalJeffersonKYUSThis drug was like a dream to me at first. I done great for the 1st 3-4 months then all went downhill. I started having severe heartburn, which kicked in acid reflux, I began to not be able to breathe through my nose, so stuffed up I couldn't smell Vicks, migraines,my female organs ached awful, bladder & constipation problems, memory problems
663 TreyBlanksTNUSLupron is an evil drug...do not take it. The side-effects are for LIFE. TAP Pharm. destroyed my wifes personality, in effect they killed her.
664 KimberlyKimbrellFLUSI am a 26 year old mother from South Florida. A few years ago I realized something was terribly wrong with my menstrual cycle. After first being misdiagnosed by a doctor that pretty much told me the pains I was experiencing were in my head, I finally found a real explanation. After 6 paps, 2 ultrasounds, 1 cat scan of my uterus and a laparoscopy I was diagnosed with stage 2 Endometriosis. My doctor “burned off all of the adhesions he could get to and promptly started me on Depo Provera to help with the slowing of the disease. After only 2 months after my surgery I was experiencing awful pains again. We continued with the Provera treatments for about 6 months. At every visit my doctor pushed fro me to take Lupron, promising that all the “bad” information I had read was untrue and it was my best chance at relief. After several visits and promises from my doctor I gave in. After my first Lupron injection I knew I had made a mistake. The pain doubled, I experienced hot flashes almost 1 an hour. Night sweats were no better, the migraines came full force and the depression I experienced had me believing I was insane. One minute I was laughing my butt off, the next minute I was in hysterics crying. I contacted my doctor who again made promises that they would go away with the second injection. I took my second 3 month injection, and the pain doubled again. My depression became bad enough that I almost lost my job, my boyfriend and I needed antidepressants. I have since suffered neck pain and now have numbness in my hands and feet. I ended up taking 3 total injections and never got relief from the endometrial pains. It has been 9 months since the last injection. I am still in pain, the depression has subsided but I still have body aches9mostly in my neck) I gained a lot of weight, I have numbness, memory loss, can not stay focused, ,oozing my hair, and still have not restarted my menstrual cycle. I am really worried that this medication has put me into permanent menopause at age 26. I urge anyone even giving at thought to Lurpon to be strong and say no way. I made the mistake of giving in to my doctor and am now paying the price. And what is most disturbing is I still have painful Endometriosis
665 AnonymousAnonymousNYUSI was diagnosed with Endometriosis in 8/07. I immediately began Lupron treatments and so began my deteriorating health. The first two months were agonizing. I had to be hospitalized for pain management. Since I have another chronic illness, rheumatoid arthritis, I also take other heavy duty meds for that. I was constantly sick throughout my entire 6 month treatment. I had my last shot in January. My endo pain was only reduced for about 6 weeks, so overall the treatment did not even help me. I have been siffering severely ever since. Constant joint pain, as if my RA wasn't painful enough during flares, now I have to deal with that pain daily. I am so weak, I can hardly do anything anymore. I forget what I am talking about right in the middle of a conversation and I just can't remember anything, even things that are a normal everyday activity such as giving my daughter her lunch money. All of the muscles throughout my body are sore to the point where I can hardly massage it. I am constantly nauseas, dizzy, always tired, always in pain, bones, muscles, endometriosis. I am suffering, out of work and no one can figure out what is wrong with me! I keep telling them that I was never this bad prior to taking Lupron. I am so severely depressed, I am now seeing a therapist and taking anti-depressants since February. Why is this happening to all of us women? We are suffering and no one is listening. Lupron is dangerous!
666 MaryLubowAL
667 KimberlyMcGuireINUS
668 CassandraZayatzFLUSI am 26 years of age and I feel like I am 62 years of age thanks to the "wonder" drug Lupron. More like Lupron the drug from hell. I took two shots (each was a 3 month supply) and I took the add back drug (after laproscopy). I went from the nice smart girl with the curly hair to medusa. It made me psycho. The hot flashes were terrible and the pain didn’t get any better. And the extreme fatigue it induces is down right miserable. I also gained 35lbs. I went from a size 6 to a size 12. My obgyn put me on Zoloft to help with the mood swings and that was also a waste of time. Overall the drug was a complete let down. It took four months for my period to start afterwards and the pain is still present. I still have daily low back pain and have resorted to alternative treatment with slow progress. If I could go back, I wouldn’t touch Lupron. It debilitates the quality of life worse than the disease it is treating with not results. Now, six months post Lupron therapy and; I hurt at every joint in my body and I have been searching for job and noticing my mind isn't as sharp as it use to be. I am easily distracted and my short term memory is non-existent. My bones ache and My hands and feet go numb and tingling without reason and I feel so helpless. I was told this drug would help me and all it has done is harm me. Not only physically but emotionally-all of my personal relationships have been negatively affected and I am overwhelmed with feelings of being out of control over my body and mind. Everything about my life has dramatically changed since I injected the poison- except one thing-I still have Endometriosis. :( God help us all who trusted our doctors when they handed us this treatment.
669 SandraOrtegaCAUSNo more Lupron, remove it from the market! Let's do what we can!!!
670 AnonymousAnonymousALI recently underwent laprascopic surgery to remove endometriosis. Dr was unable to remove all of it and is giving me option to start treatment of Lupron for 6 months or have more extensive surgery to cut me open and remove more of the endo. From what I have read online so far, I do not see that Lupron seems to be a good option at all. It seems to cause more harm than good. Has this medication worked for anyone?? Please let me know if it has worked for you????
671 MelissaAbernathyALUSThis drug is horrible. I experienced alot of the adverse side effects, and no it is not all in my head. While this drug may be safe for 10% of the women in the world, it is also very dangerous for the others and there should be alternative treatments for women suffering with this disease
672 RobertWhiteNYUSthis rotten drug has caused my wife to suffer severe migraines bleeding and loss of apetite and diziness. curse you beasts to do whatever it takes to make a dollar. I hope this is big and some day you get the pants sued off of ya
673 shannonterlaFLUSI was kept on Lupron continuesly for 2 years for endometriosis from 2006-2008. I have had severe mood swings, joint & bone pain, ankle injuries that will not heal, headaches, memory loss, fatigue, it has effected my teeth & my legs are weak & it is hard to walk. I have severe constipation. I have no sex drive. THIS DRUG IS NOT MENT TO BE TAKEN FOR THIS LONG!!! MY DOCTORS OFFICE MESSED UP WICH INTURN AIDED THIS DRUG IN THE PROFOUND EFFECT IT HAS HAD ON MY LIFE. DO NOT TAKE THIS DRUG!!!!!
674 JoeEngelsVAUSMy Wife and I were attempting IV Fert. About a week into the Lupron injections she had a stroke. She was 29 at the time.
675 DenikDenikKSVINice site banking [URL=http://tygybko.1gb.in/index.html]banking[/URL]
676 KellyHattonOHUSI took a six month series of Lupron shots in 1993 when I was 16. Since, that time I have been diagnosed with Fibromyalgia and it is a constant struggle to maintain my life.
677 BarbaraRuckserWVUSI have been on Lupron depro 3.75 mg for the past five months for fibroid tumors. All of a sudden my body starting aching in all my joints. I could hardly walk. I went to the chiropractor and I went to the doctor. I had blood work and x-rays conducted for several different forms of arthritis and all the tests and x-rays were negative. It hit me two days ago that it could be the Lupron shots. I called my OB/GYN and when he returned my call he stated he had never heard of a complaint of joints aching and told me to continue with my last shot. He said approximately a month after the last shot if my joints quit aching it was probably the Lupron. I decided to get back on the internet and research, again the drug Lupron. I found this site and could not believe what I was reading. I thought maybe I had already submitting a comment after reading several of the comments. It was hard to believe that I was excited that I figured out why I had joint pain. I have made the decision not to take the last shot and hopefully my body will go back to normal. I am 50 years old and feel like I am 100. I am just praying that the symptoms do not last several years like I have been reading from other patients of Lupron. I really wish I would have found this site before I took the shots. This drug is horrible. It should be taken off the market!!!! It might be too late for us to feel better, but it could save someone else from going through what approximately over 600 patients of Lupron have commented on this website.
678 AnonymousAnonymousKYUSreally horrific side effects that border on disabling.
679 AnonymousAnonymousNYUSI had Uterine Fibroids NOT Endo was given a Lupron Depot 3 month shot (shot that lasts 3 months)to control the bleeding. Not only has is forever changed my life, it really isn't approved for this use, which I learned after the fact. I have had TIA's, memory problems, extreme bone loss, migraine headaches, mussel weakness, vision problems. There's more =( My most recent bone scan shows osteoporosis of an 70-80 yr old WITH ostio! I went from great health to disabled. That shot was 6 years ago. I am worst. Some days I can barely walk. Sick of Tap's denial of this. Disgusted! I feel like I am dying a very slow painful death. No one should take this drug!! To date, no reversal of the damage in fact it's worst. I wish I could turn back time and never have that shot!!!!!
680 TiffanyNegronFLUSI am currently on Lupron Depot and would like to know if these horrible side effects will remain with me after treatment. I support any investigation that will give me an inkling to what my future holds. Please advise me on how I could be of further assistance.
681 KARINLAYMANRIUSI JUST HAD MY SECOND lUPRON SHOT THAT I WAS TOLD WOULD BASICALLY FORCE ME IN TO EARLY MENOPAUSE & ALLEVIATE MY HEAVY BLEEDING. I AM 51 YEARS OLD AND WAS TRYING TO AVOID A HYSTERCTAMY. I SUDDENLY FOUND MYSELF ALMOST UNABLE TO WALK. MY KNEES, ANKLES, ELBOWS & NECK ARE HURTING ME SOOO MUCH. I WALK LIKE AN OLD LADY NEEDING ASSISTANCE. I NEVER REALLY RESEARCHED THE SIDE EFFECTS BECAUSE I TRUSTED MY DOCTOR WHEN SHE RECOMMENDED IT TO ME. HOWEVER NOW AFTER FEELING SO CRIPLED I DECIDED TO GO ONLINE & RESEARCH THE SIDE EFFECTS & FOUND ALL THESE STORIES FROM OTHER PEOPLE HAVING VERY SIMILAR SIDE EFFECTS. I AM SO SCARED & HOPE THAT THE PAIN WILL GO AWAY. IF ONLY I HAD KNOWN BEFORE THAT THIS COULD HAPPEND I WOULD HAVE NEVER TAKEN A CHANCE. I HAVE BEEN TAKING IBRUPROHEN EVER 4 HOURS FOR THIS TERRIBLE JOINT PAIN & IT DOES NOT DO A THING. PLEASE MAKE SURE THE DOCTORS KNOW WHAT THEY ARE DOING BEFORE THEY PRESCRIBE THIS AWFUL DRUG.
682 JacquelineLowmanGAUSI was given Lupron in July of 2005 to treat endometriosis. Immediately after my first shot, I experienced hot flashes, mood swings, and a twenty pound weight gain. I refused any more shots. Now, three years later, I have not lost the weight I put on, my blood pressure is high, and I have joint pain that I never experienced until Lupron. Please do not continue to allow this drug to be used for treatment of any disorder in women. Its negative effects far outweigh any good that will come of taking this drug for a woman.
683 AnonymousAnonymousCALupron saved my life. I have a few hot flashes that I can calm with iced drinks or ice cream. I know it is not the same for everyone, but it is not all bad all the time. I had long difficult periods TWICE a month, and my fibroid has shrunk to allow a laparascopic hysterectomy. To friends out there who are considering this treatment, at least give it a chance. It helps to remain active (walk, swim, exercise...). I was severely anemic (52 HB) and needed two blood transfusions. I am now a healthy 125 HB, healthy weight, and can work my high stress but wonderful job. I hope this helps. Good luck to all.
684 AnonymousAnonymousNCUS
685 LisaParteeFLUSDon't allow this drug to be used unless the patient thoroughly understands/comprehends the ramifications of the 'TRUE' side effects!!!My doctor put me on Depot Lupron injections for one year to ease my symptoms of Endometriosis; I was taking strong medication to ease the pain! My last injection was April 2006 and it's now July 2008 and I still suffer from the side effects. The horrendous side effects during and after treatment are not worth taking this drug. Had I been given the 'TRUE' list of side effects prior to getting the injections I WOULD NOT have agreed to use the drug Depot Luron. I'd rather take strong pain meds until I went through Menopause naturally then to ever have taken this medication. People NEED to be FORE Warned of the life altering side effects!!!!!!!
686 AnonymousAnonymousNYI am 31 years old and Lupron has ruined a huge part of my life. I was on it for 6 months 4 years ago, and to this day have horrible side effects! Doctors have been testing me constantly for bacterial infections to try to explain why I have been so sick. I think I may have found the answer! I lost most of my hair, and almost my relationship. I am miserable, irritable and could sleep 24 hrs a day. I laugh one second a cry the next, the pain is unreal. Headaches, blurred vision, dizziness, which they told me was vertigo. It goes on and on. Something needs to be done about this!!!!!
687 AnonymousAnonymousALUSI was given the shot for endometriosis as well. The two years following, my life crumbled. My side effects were personality changes, depression, memory loss, anxiety, anger, really too many to mention. After about two years, it was like I woke up from a nightmare. I slowly began to feel like myself again, but not completely, to this day. This was seven years ago. Please stop this drug from ruining the lives of other women.
688 AnonymousAnonymousALUSI just wanted to elaborate a little more about the comment I gave saying that lupron caused my life to crumble. I got a divorce from my husband of 21 years. Prior to the shots, we never had any marriage problems whatsoever. I still love him to this day. Even though he hasn't spoken to me in years. I turned my whole family away from me. Slowly my family has come back around. But only when they begun to realize the truth about the shot and what happened to me. I was such a happy person prior to those shots. I try to be happy now but when I turned my back on the man I loved and he has never forgiven me, it kills me inside, knowing that I can't change it. I have asked God to forgive me and he does. I am so thankful that God never turns his back on us, no matter what. I have asked forgiveness from my husband, but he will not forgive me. It is painful everyday that I have to live with all that. I just had to say all this for some reason. Maybe it will help someone else understand they are not alone. God Bless.
689 ElizabethHodgesTNUSI took ONE lupron shot in 2002 for endometriosis... come to find out 4 years later, I had chronic appendicitis. I was OK during the shot. When time to take 2nd dose, I started having extreme tremors, short term memory problems, dry eyes, severe arthritic pain. I was dx last year with a whole bunch of back disorders, plus I am now being tested for MS. I'm only 30!!! I took Lupron at age 25. This drug is NOT good for women!
690 ShellySchofieldMDUS
691 lindavieraNVUSI want to know long term side effects. Had two different doctors use injections of me. One to shrink a fibroid before surgery, three months. The second for what the doc. thought was endo. funny since I already had a hysterectomy. This time was for six months. Very afraid of long term affects.
692 AnonymousAnonymousCAUSHad awful side effects. And my endo is back after only a few months. Not worth the torture I went through on the shots. I had hot flashes, night sweats, memory loss, joint pain, weight gain, achne, nervousness, anxity and depression. The worst of it is, I still have these symptoms. Not as severe, but they are still there. If everything ended when my 6 month treatment ended, maybe I could handle it. 4 months later still feeling it!
693 TracyEatonKYUSI have received the Lupron injection for 16 months for the treatment of breast cancer. I refer to it as poison. This drug is very debilitating!!! I have had so many side effect, weight gain, anxiety, depression, extreme joint pain, nervousness, legs and hands swelling. I find myself wanting to be alone more and more often, alienating my boyfriend and my family. I refuse to take any more injections of poison!!!!
694 TracyEatonKYUSI have received the Lupron injection for 16 months for the treatment of breast cancer. I refer to it as poison. This drug is very debilitating!!! I have had so many side effect, weight gain, anxiety, depression, extreme joint pain, nervousness, legs and hands swelling. I find myself wanting to be alone more and more often, alienating my boyfriend and my family. I refuse to take any more injections of poison!!!!
695 AndrewWoernerKYUS
696 VeronicaBradleyKYUSI had 6 months of Lupron in 2004. Since then I have been to GI dr's. The neurologist numbers of times with MRI of the back and neck, Nerve Conductive Studies, Cat Scans, and still live with the pain an weakness of my left extremities. The site of Injection was my left side each time. Today I was diagnosed with Bell's Palsy so now the nerves on the left side of my face are effected. It has been constant pain and weakness for 4 years now. This drug should be taken off the market for treating Endo. No physicians support each of these are a result of Lupron. I am convinced. I am 33 and feel like I am in my 70s or 80s.
697 VeronicaBradleyFurther, I have been put on Anti-Anxiety meds, and been diagnosed with Interstitial Cystitis.
698 VickyFanninWVUSI am on my fifth Lupron shot for endo. My doctor refuses to do a hysterectomy because he says I am to young I am 33 years old. I have never felt so bad in my life. I have severe joint pain and tightness in my chest, fatigue, hot-flashes, memory loss, depression, and can't sleep at night. I would advise everyone please don't take this drug its not worth the side effects. I am now afraid what of what my future is going to be like and if I'll ever feel good again. My doctor says I will go back to normal not to worry but they haven't even examined me or taken blood work and its going on 6 months.
699 DondeeBlairTXUSI was given a 6-month series of Lupron for endo., in 1994. The Lupron put me in a "chemically induced menapause". This was how my Dr. at the time explained it to me. I was 24 years old. I am now 38 years old and suffer from memory loss. I always had a sharp memory as a young woman. But, since the Lupron shots I have suffered embarrassing bouts of forgetfulness. Also bouts of depression. The experience of Lupron were horrible. Hot flashs, night sweats, horrible mood swings,zero sex drive, forgetfulness, brain fog. Please beware...not all symptoms go away after you stop the Lupron. If so this website would not be neccesary.
700 AnonymousAnonymousNJUSThis website is a blessing! In December of 2007 I had laproscopy surgery & my GYN discovered extensive endometreosis. The endo is so bad ,not only did it effect my reproductive organs, but bladder & surrounding areas. My Dr. recommened I go on Lupron treatments for 6 months. She claimed this will make me feel better, help with the pain and heavy bleeding. Also along with the Lurpon shots, she suggested I had the pleasure of taking Norethridrone to combat the "menopause" like symptoms. (this caused additional symptoms!)Well from the first shot it has been a living hell! I gained 30 lbs, high blood pressure, fatigue, joint pain, depression, heart palpatations. I had to stop the noriethridrone 3 months into my treatment & I did not complete my last shot. No woman should go through what all of on this website have experienced! This drug needs to be taken off the market. The sad thing is, we trust our doctors to do the right thing, to help us when we are not well. In this case I think they have failed all of us! I wish everyone well!

 

Powered by iPetitions
Tell a friend about this petition

Tell a friend about this petition