| # | First Name | Last Name | State | Country | Comments |
|---|
| 501 | Anonymous | Anonymous | NY | US | severe hair loss, coming out in clumps, from root.
severe bodyaches and bone pain
prescribed for ovarian cysts, had surgury for that and invasive endometriosis 7/07 |
| 502 | Anonymous | Anonymous | NY | US | severe hair loss, coming out in clumps, from root.
severe bodyaches and bone pain
prescribed for ovarian cysts, had surgury for that and invasive endometriosis 7/07 |
| 503 | Anonymous | Anonymous | MD | US | OK It's been 12 years and still never lost the weight. I was in so much pain from the endometriosis that I was willing to try anything. And I was so wrong; I became a maniac with the first shot. I also gained 15 pounds with in the first two weeks. these shots were done weekly and I was suppose to go for 6 months of weekly shots. After 5 months of losing my mind, gaining weight, no sex, no sleep and blaming everyone but the medicine; my Husband made me go for a second opinion. After the blood work came back it showed my hormone levels were that of a man. It took years for the weight gain to stop. I have never recovered. I still can't sleep a full night and my body has never been the same. Now 12 years later and I am still getting hot flashes. If you Doctor offers Lupron, refuse as part of your treatment. |
| 504 | Lisa | Feinstein | | | Please stop profiting(unethically)by preying on women suffering with a diagnosis of endometriosis; extremely strong yet vulnerable women who are in constant excrutiating pain and desperate to maintain their fertility.
Subjecting this group to Lupron in order to increase a company's market share is morally reprehensible.
Lupron produces horrible and sometimes irreversble side effects.
I was prescribed lupron when first diagnosed with endometriosis 10 years ago. NO it was not a viable solution. NO it did not surpress the endometriosis for any significant length of time. YES, I truly suffered while taking this very expensive drug. Ten years and 4 surgeries later I am coping with stage IV endometriosis. Remember, we are your mothers, daughters, sisters, cousins, friends, and neighbors.
Respectfully,
Lisa Feinstein, LMSW |
| 505 | Jodi | Gibbs | PA | US | The limited benefits when compared to the long-term effects of this drug should seriously cause additional scrutiny. |
| 506 | Anonymous | Anonymous | NC | US | This is my 2nd injection and the dside effects are TERRIBLE. I would take the horrendous pain back over this debilitation any day |
| 507 | christina | a | WA | US | They're laughing at us. They dont give a crap. We are experiments to them. |
| 508 | Sherry | Shally | LA | US | Not warned of side effects. The fatigue is pretty bad, so is the depression. My md was so cavalier about this drug. |
| 509 | Rhonda | Williams | FL | US | |
| 510 | Yuko | Nishizawa | OR | US | |
| 511 | Kimberly | Drum | VA | US | I had extreme joint and muscle pain, especially in my hands and arms. Debilitating at times. The side effects lasted 8-9 months after my injection. I would NEVER take Lupron again. |
| 512 | Terri | Scott | WA | US | I took Lupron for 6 months in 2000-2001 for begining stage of Ovarian Cancer. My immune system basically started shutting down and now my bones are going bad. I have the spine of an 90 year old and I have not even turned 40 yet. The pain at times in imbearble. They told me it might cause bone loss but this is rediculous. I am an RN so I know a lot about bone density. What is going to happen over the next few years? |
| 513 | Mandy | Hayden | MD | US | |
| 514 | Mandy | Hayden | MD | US | I suffered the typical side effects but was never warned of the awful headaches and horrible memory loss. I've been off of Lupron for 3 years now and still suffer from the memory loss, random hot flashes, and night sweats! If I can convince one woman to not take this drug, than I think I've done a good thing! |
| 515 | Mujaji | Law | AZ | US | Side effects appear to have worsened after treatment stopped. I now have high blood pressure and weight gain. I also continue to have vaginal dryness and dysfunction. |
| 516 | Anonymous | Anonymous | | IE | very hard 6 months. would never do it again. side effects were terrible. |
| 517 | A | Pedreschi | | IE | only lasted for 5 months. could not go on with the last month as the side effects were too much. continuous sweating, headaches, dizziness, extreme hot flushes, chills, poor concentration, pain.... now i'm finished and got my period back yesterday and the pain was the same as it was before i had the injections. so in my eyes it has done nothing for the endometriosis. would not do it over again. |
| 518 | Christina | Reffner | PA | US | I thought Lupron would have mad things better but after the treatment everything was screwed up and I can't get my body back to what it was |
| 519 | maria | rivera | NY | US | |
| 520 | Dawn | Henderson | | CA | Lupron needs to be further investigated for the health of all women who have used it. The side effects are horrendous and you will spend the rest of your life being told that you're crazy to think a drug could make you sick. |
| 521 | Sharee | Janda | VA | US | |
| 522 | Anonymous | Anonymous | DE | US | |
| 523 | Magdalyn | Dustin | NY | US | I am a part of an online support group called LupronVictims on Yahoo. We have decided to do a letter writing campaign for Valentine's Day. We all worked together as much as we could, dealing with our own health issues, to make up three different "sample" letters. This would be a generic letter that can be sent if you don't know what to write for your own personal letter. Now, you didn't have to have had a reaction to Lupron or even have been on it. What this letter is meant to do is to inform. To show the desire that we have for further Long Term studies to be done for Lupron. As many of these women that I talk with have been off of Lupron for days to years and STILL have all the same symptoms. I'm hoping to spread the word and have some of my friends/family join in in the letter campaign. I can email the letters and the addresses that we've already gotten together. I hope you will be interested. You can remain anonymous as well. Please help. If we send all of these letters out on one day, we are more apt to make an impression on our target media...the FDA...etc. Please help. That would be the BEST Valentine's gift!!! Love to you all! |
| 524 | Magdalyn | Dustin | NY | US | I am a part of an online support group called LupronVictims on Yahoo. We have decided to do a letter writing campaign for Valentine's Day. We all worked together as much as we could, dealing with our own health issues, to make up three different "sample" letters. This would be a generic letter that can be sent if you don't know what to write for your own personal letter. Now, you didn't have to have had a reaction to Lupron or even have been on it. What this letter is meant to do is to inform. To show the desire that we have for further Long Term studies to be done for Lupron. As many of these women that I talk with have been off of Lupron for days to years and STILL have all the same symptoms. I'm hoping to spread the word and have some of my friends/family join in in the letter campaign. I can email the letters and the addresses that we've already gotten together. I hope you will be interested. You can remain anonymous as well. Please help. If we send all of these letters out on one day, we are more apt to make an impression on our target media...the FDA...etc. Please help. That would be the BEST Valentine's gift!!! Love to you all! |
| 525 | Anonymous | Anonymous | OH | US | it's an awful drug :( |
| 526 | Emily | Frenette | | CA | My doctor has been trying to convince me to try Lupron to combat the effects of Endometriosis but I have heard so many horror stories from women who have experienced negative side effects. I want to be able to make an informed decision. |
| 527 | Cindy | VanPatten | NY | US | I also was the Lupron injection in 2004 worst thing ever I was a complete basket case extreme headaches , body hurt i couldn't eat sleep or even drive a car after that for at least two months from last injection i also developed a blot clot in my leg. I still am suffering side effects 3 years later my body has never been the same . |
| 528 | Anonymous | Anonymous | NC | US | |
| 529 | Holly | Garrison | MD | | |
| 530 | Roger | Keesee | WV | US | I was in denial of my prostate problem for around 6 years. It cost me the woman I love. I was diagnosed with Advanced Stage III Prostate Cancer in May 2007. After that I was put on Trelstar for reduction of testosterone. While I was on Trelstar for the 1st 6 months, my only side effects were Hot Flashes and some joint pain. On January 7th 2008, my Urologist changed it from Trelstar to Lupron. I began getting sick within the hour. As it turned out, I couldn't sleep for the first 2 nights, then 3 hours, 5 hours. Sleep is still a problem. I wasn't able to eat for 4 days (till the 11th) I have displayed about half the "documented" side effects, plus one that isn't documented. Tremors! This absolutely drives me nuts. People have ask me if I was freezing to death, I shake so much at times. I believe I could handle the muscle, joint, and bone pain, headache, and rapid heart rate, etc... But it is the tremors that really make doing my job close to impossible. Lupron will NEVER be injected in me again. I will let the cancer have its way First. It will be Trelstar or nothing!!! (Casodex isn't so hot either) |
| 531 | Anonymous | Anonymous | TX | US | I am petitioner #366. Last I posted I found this site looking for answers to neurological problems I have been having. I had mentioned the hypertension I developed after the 1st injection and that 12 yrs later am still on bp meds. After MRI's I finally have answers to the neurological symptoms. I am 33 yo and had Lupron when I was 21 , I have two herniated discs with spinal and neural stenosis along with degenerative changes. I received lupron in the mid 90's. I was never told about the bone loss or instructed to take supplements. After reading up on this drug I can't help but think it has to be related. I wish I had done my own research before ever taking this drug. I was given it as treatment for endometriosis .... In my case the treatment had only short term benefits if any. I am glad to see so many people coming here researching this drug before taking it. |
| 532 | jennifer | blevins | WV | US | took lupron in 2001.now have terrible joint pain all over.fatigue,sweating,headaches,back pain,.seeing a neurologist.suspecting fibromyalgia.have endo again.pain is all day,every day.had to quit work.barely go outside.did not know all the side effects. |
| 533 | Beverly | Srbich | MI | US | My daughter-in-law to my knowledge received only 2 shots of Lupron and has not been the same since. At times my son had to carry from the bed to the bathroom. Her Gyno prescribed this treatment after she had a hysterictomy! When she she questioned the side effects, the Dr's reply was," That's why I have insurance". Will her dam insurance bring her health back to her, I DON'T THINK SO. She can stick her insurance where the sun don't shine. If you can't give her back her health let the drug company know what you and their lousy drug did to her. She did not sue you so this is the least you could do for her. |
| 534 | Dawn | Shiloh | | CA | |
| 535 | Nichole | Powell | IL | US | I am 31 yrs old and I was diagnosed with endometriosis when I was twenty five. I've had two kids. I have been on every birth control pill there is and it would help the pain for a little while but then it would return. The Lupron injection has been the only thing to help my pain and I've been on it for about 14 months now. I'm only 5ft and I weigh 112 lbs so far the only side effects have been the night sweats and the hot flashes which I would have with the hysterectomy. I guess my experience has been ok with this drug but I am afraid of the long term effects. What will happen to my body when I stop them and what this will do to my bones. I don't drink or smoke so I'm hoping my health will be ok. |
| 536 | Anonymous | Anonymous | SC | US | I had six injection of Lupron beginning in September of 1996. My first injection gave me a severe migraine, and I suffered from migraines for years after taking Lupron. I have developed Fibromalgia, Facet Syndrome, Cervical and Lumar arthritis/spondylosis, Myalgia and Myositis/Chronic Pain, and Osteoporosis since taking this medication. I suffer with pain on a daily basis. I have been unable to sustain employment for any length of time since taking these injections. The migraines caused me to quit my job of 12.3 years, and the longest period i've worked since that time has been eight months. I sincerely feel that Lupron has destroyed my life. |
| 537 | Anonymous | Anonymous | CA | US | |
| 538 | Anonymous | Anonymous | | PR | |
| 539 | Anonymous | Anonymous | MA | US | I've only received 2 doses of Lupron and I am experiencing back pain, severe hotflashes and pain in my right foot which I was told was unlikely to be a side effect. If there were an alternative, I would like to consider it |
| 540 | Anonymous | Anonymous | IL | US | Was given lupron for "prostate cancer" was not told what level or stage the cancer was at. asked the doctor what the actual PSA result was, never given the number just told that I was "okay". The shots were very expensive, over $1000.00. and had to be preapproved by insurance before administering. Symptoms after shot: bone pain especially in hips, weakness in arms and legs,headaches(didn't experience many headaches prior) impotence, neurological problems,gait, loss of memory.
was "diagnosed" with Parkinson's when 83 years old in 2006. had the surgery for prostate in 2001. rec'd the shots after the surgery. One neurologist wanted to do further testing to make sure had Parkinson's, but being the age and weakness didn't think it was worth the travel. then diagnosed with esophageal cancer/tumor in 2007. had radiation and chemo to treat that.
had heard tumors were a symptom of Lupron? any other men experiencing long term effects of Lupron in a younger age, was told by many doctors that many of these symptoms are from "old" age. but didn't have many of these symptoms 10 years ago? |
| 541 | Anonymous | Anonymous | IL | US | I had the lupron injections for 6 months because my doctor thought I may have endometriosis. With every injection I had severe hot flashes day and night,I would get light headed,dizzy,racing heart beat,and nauseated, severe joint and bone pain. Its been 1yr 1/2 and my bones and joints are in pain everyday. I have degenerative disc disease,narrowing of the spine, and my body aches as if I have the flu are something every
single day. I also had to have shoulder surgery
due to arthritis since this shot. Every doctor that has seen x-rays says my bones are as bad as someone in there sixtys are older. What tops it off I never needed this shot the doctor misdiagnosed me it wasnt endometriosis it was diverticulitis and I had to have 12 inches of my colon removed. Now Im left in severe pain everyday
and Im 37 yrs old. I have never felt the same. Its so hard to get around sometimes. |
| 542 | Rebecca | Hearns | OH | US | I used Lupron for 12 months total. This drug does not work and is not worth the long term side effects. Very Dangerous drug. |
| 543 | Kimberly | Dee | NJ | | Lupron made me totally Nuts! I had horrible hot flashes/night sweats & mood swings. Never again! |
| 544 | Anonymous | Anonymous | LA | US | |
| 545 | Kerri | Russo | NJ | US | This drug has caused me unbearable pain & I have had to stop working as my body is in constant pain. This has been going on for months |
| 546 | Anonymous | Anonymous | IL | US | I ended up in the hospital for five days because of this drug. I was vomiting, nauseas and has tremndous, tremedous pain. Please do more studies! |
| 547 | Craig | Reynolds | MI | US | 61-year-old male undergoing Lurpon treatment for enlarged prostate and T1a cancer whose prescribing physician has shown a casual disregard for side effects of Lupron, which in this case may include elevated blood glucose level, slight anemia, weakness in forearms and hands. |
| 548 | Patricia | Caproni | IL | US | Hospitalized for 5 days due to severe vomiting. Nauseas for 2 months with horrible abdominal pains |
| 549 | Peggy | Flaherty | IL | US | |
| 550 | Maria | Kaley | MN | US | I was on 1 month shots and experienced not much more than hot flashes..and then switched to the 3 month shots. Since then I have experienced terrible headaches, fatigue, weight gain, hair loss, dizziness, hot flashes memory loss and mood swings. This drug is hell and the drug companies are sure making a haul off of us-since the 1 month shots are over $500 per shot!! |
