| # | Name | Comments |
|---|
| 1251 | Anonymous | |
| 1252 | Kimberly Gridley | |
| 1253 | Jennifer Locken | |
| 1254 | Debbie Overall | |
| 1255 | Tiffanie Welling | |
| 1256 | Germaine Alfinez | |
| 1257 | Anonymous | |
| 1258 | Marie Johnson | |
| 1259 | Linda DeVore | |
| 1260 | Kimberly Putnam | |
| 1261 | Cindy Kingsford | |
| 1262 | Amber Hendricks | My son, Aiden, was born with Hypoplastic Right Heart. Luckily, he was diagnost in-utero. I was one of the "lucky" parents to have at least known in advance what we were up against.
I hear way too many stories of babies being born and sent home to later return to the hospital via ambulance or flight for life because of a heart defect the parents knew nothing about. Too many children die because the life saving medicines were not given it time. This is such a simple test, I really cannot believe it is not already protocol. If these were your children, wouldn't you want it done to know you were taking home a healthy baby? I beg you to implament this simple but life saving procedure to ALL newborns. If it could save even ONE life, isn't it worth it?
sincerly,
Amber Hendricks, mom to the strongest 3 yr. old boy who is fighting a CHD and WINNING!! |
| 1263 | Liz Leblanc | |
| 1264 | Annette Robledo | |
| 1265 | amy simpson | |
| 1266 | Anonymous | I pray that we find a cure before another child becomes an Angel in Heaven. |
| 1267 | Kathy Van Tine | My Son Robert had open heart surgery at 7 weeks old to fix a VSD(ventricular septal defect ) and an ASD(Atrial septal defect) His life was saved by early detection and skilled surgeons. I am so grateful that he had access to both. |
| 1268 | Jennifer O'Neil | |
| 1269 | Christina Davis | As a mother of a child with CHD I know this is an important test! |
| 1270 | Melissa Bright | My son Jacob was born with TOF w/membraneous pulmonary atresia on 5/18/07. Open heart scheduled for 10/12/07. |
| 1271 | Nakia Lay | |
| 1272 | Leslie Garone | PLEASE, PLEASE help protect our babies...my grand daughter almost died because no one detected her heart defects befoer they sent her home. Where it not for my daughter-in-law realizing that something was wrong...she would not be here today with her sweet smiling self..help save our children!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! |
| 1273 | Terri Leonard | |
| 1274 | KARON VAUGHN | |
| 1275 | Lisa Miles | |
| 1276 | Crystal White | |
| 1277 | Karen Lott | |
| 1278 | Chasity Livingston | |
| 1279 | Lisa Qualls | I am the mother of 2 heart boys!!! |
| 1280 | Kyla | |
| 1281 | Diane Zook | I work in the Pediatric Heart Center at Mary Bridge Children's Hospital in Tacoma, WA. We have recently received grant funding and IRB approval to implement a newborn screening program to identify congenital heart defects (CHDs) [incidence 8-10:1000 & prevalence 1.3-1.8M in US] in asymptomatic newborns, utilizing pulse oximetry testing (sensitivity 63-72%, specificity 99.8-99.9%). I hope to eventually see newborn screening for CHDs become mandatory nationwide, similar to newborn screening for genetic & metabolic disorders and newborn hearing screening. Pulse oximetry testing could be performed at 24-48 hours of age/prior to discharge from the hospital of birth.
Ref:
1. Accuracy of pulse oximetry in screening for congenital heart disease in asymptomatic newborns: a systematic review. Arch Dis Child Fetal Neonatal Ed. 2007 May;92(3):F176-80.
2. Should pulse oximetry be used to screen for congenital heart disease? Arch Dis Child Fetal Neonatal Ed. 2007 May;92(3):F219-24.
3. Comparing the clinical and economic effects of clinical examination, pulse oximetry, and echocardiography in newborn screening for congenital heart defects: a probabilistic cost-effectiveness model and value of information analysis. Int J Technol Assess Health Care. 2007 Spring;23(2):192-204.
4. Newborn screening for congenital heart defects: a systematic review and cost-effectiveness analysis. Health Technol Assess. 2005 Nov;9(44):1-152, iii-iv.
5. The use of pulse oximetry to detect congenital heart disease. J Pediatr. 2003 Mar;142(3):268-72. |
| 1282 | Kristina Ankrum | |
| 1283 | Nancy Erwin | This is so important- my son has congenital heart disease this needs to be done on all newborns. |
| 1284 | Tom Naylor | |
| 1285 | Laurie | |
| 1286 | Heidi Collins | |
| 1287 | Amy Lalonde | We were very fortunate that our daughter's heart defect was caught in-utero, as it is one that is often missed with ultrasound screening. We would have been home thinking that she was fine, and she could have died as a result. My daughter was lucky, but how many others will be as fortunate? Pulse oximetry testing could help countless babies! |
| 1288 | Amy Lalonde | We were very fortunate that our daughter's heart defect was caught in-utero, as it is one that is often missed with ultrasound screening. We would have been home thinking that she was fine, and she could have died as a result. My daughter was lucky, but how many others will be as fortunate? Pulse oximetry testing could help countless babies! |
| 1289 | christina hiney | |
| 1290 | Lauren Osterhout | My daughter was not diagnosed the CHD until a year after her birth. Thank God a vigilante pediatriction took the time to listen to her heart and take her blood pressure. This test would have prevented a year of pain and discomfort for our child. |
| 1291 | stacy weinholtz | |
| 1292 | Michelle Daigneau | I am the mother of a 3 year old baby girl named Emma Cathryn who was born with 2 congenital heart defects, a VSD and ASD. The ASD was only detected because her murmur from the VSD was heard during inpatient screenings shortly after her birth. If it weren't for a VERY thorough doctor sugegsting we have an echocardiogram done to check things out further,we would have never known about her atrial septal defect until possibly too late! This newborn screening is a VITAL piece to protecting all of our children and giving those with CHD's the best chance we can to have a healthy life... Please help this testing become standard practice to protect our babies! |
| 1293 | CheyenneChavez | My daughter has ASD and PDA. She had surgery when she was one - now she is almost 7. She is doing wonderful. Please keep up the research. It saved her life. |
| 1294 | Tara Rudewicz | |
| 1295 | Kelly | Please help save our babies from this startling stats for chd! If it was personnally your child that was saved wouldn't it be worth it?? I think we all know the answer is yes we need this to protect the newborns! |
| 1296 | Sabrina | |
| 1297 | LISA LANGFORD | |
| 1298 | Stephanie | Please do screenings for congenital heart defects in newborns. I know someone who lost their nephew from one. |
| 1299 | tammy smith | |
| 1300 | Anonymous | |